Alpher 1 .

[mumsy]

Been tested.test has come back has having low levels for alpher1?gp has revered me to chest clinic at my local hospital.

[Hidden]

Excuse my ignorance what is Alpher 1 I have never heard of this and want to learn more, it's only six months since I was told moderate copd. There is still much that I do not understand, hoping that will change here with more experienced members passing on what they have learned.

[mumsy]

It's a genetic form of copd.

[Hidden]

How do they test lungs for genetic copd, have a strong dislike of operations, having two sons would have to know if there is a part of this genetic.

[mumsy]

Just a simple blood test.

[Hidden]

I will ask my GP if he can refer me for a test, soonest. Will this alter the way copd is treat should anything be found, could be worrying without reason here but have a need to know.

[Hidden]

A think its emphasema a know thay do genetic test for that no thay just band most lung problems as copd ... Few years ago thay would give proper name of condition's but now its very vauge

[valj]

It sounds like it could be alpha -1 antitrypsin deficiency, but you would need to check this.

[mumsy in reply to valj]

My gp told me my antitrypsin level is 0.995?

[mumsy in reply to mumsy]

I make a error it's 0.95!

[Hidden]

Hi, if you haven't already then can I suggest calling us here at the helpline to speak to a nurse for a little more clarification? If / when you are ready of course, tthe no is: 03000 030 555 (or you can email if you prefer).

Take care.

[fishtail]

its Alpha 1 Antitrypsin deficiency.(Bronchiectasis-lack of a certain enzyme in the lungs).Mine is hereditry and my children have been tested for it.my two nephews have it so has my younger brother.Its not always hereditry,my friend has it due to having pnuemonia and TB when she was a child.The name COPD covers a wide range of lung complaints.Not just emphesemia.Hope this info is helpful to you.x

[gemmalou]

what level was it hun? My sister has just found out she is 0.8 x

[mumsy in reply to gemmalou]

I was just told it was low.my gp is making a appointment for the local chest clinic at hospital.

[mumsy in reply to gemmalou]

My level is 0.95.