Have you got COPD? Do you know someon... - Lung Conditions C...

Lung Conditions Community Forum

56,322 members66,953 posts

Have you got COPD? Do you know someone who has?

Carolyn_McCole profile image
6 Replies

Hi Everyone, i'm the BLF communications officer for Scotland and Northern Ireland.

We've done a bit of partnership working with the Health Inequalities Alliance to produce a survey for those with experience of COPD in Scotland.

We hope to use the results to campaign for improved services that are delivered in a consistent manner across the nation.

If you have experience of COPD, perhaps as a patient or carer, please log onto lunguk.org/Region/Scotland before the 30th July and take the survey. We really want to hear your story.

Thanks.

Written by
Carolyn_McCole profile image
Carolyn_McCole
To view profiles and participate in discussions please or .

The ability to reply to this post has been turned off.

6 Replies

hi yes i have copd ive had it for years, i have only one lung also a cysted not maligrant. but is on left side and i am on oxygen consatrator 15 hrs a day. i still go out and clean and do every thing for myself , i gave up smocking 5yrs ago i asked the doctor if i carried on smocking i would only have 15 mouths to live.and if i gave up about 15 yrs. i gave up that day. i have 4 wonderfull children all grow up and 6 grandchildren,and good friends . thats all for now whitelegg.

Carolyn_McCole profile image
Carolyn_McCole in reply to

What a story Whitelegg, thanks for sharing. Where is it you're based?

silvercloud profile image
silvercloud

i dont have COPD. i joined the site looking for imformation for a friend. i liked chatting 2 the people, i find them so possitve and they help each other out with any probs they have. i have never came across a web site like it. and good luck 2 them all. x

Carolyn_McCole profile image
Carolyn_McCole in reply tosilvercloud

Yeah it's a great site, isn't it? It's wonderful that people have somewhere to share their experiences and build their confidence. Glad you're also getting a lot out of it. Tell your friends and maybe they'll benefit too.

Poppypup profile image
Poppypup

I was diagnosed two years ago - and after getting told I had the lungs of a 35 year old was told the next year my lung function was 35% Guess it ws a case of someone not knowing how to read the results :-( Have done the survey. Have a great practise nurse who helps in any way possible, and she runs the resp clinic :-)

Carolyn_McCole profile image
Carolyn_McCole

Hi Poppyup. Thanks for your comments and for taking the survey. That's really unfortunate about the mix-up with your results, but i'm glad you're happy with your practise nurse. Where abouts are you based?

The ability to reply to this post has been turned off.

Not what you're looking for?

You may also like...

Research study - Do you have COPD? Using computers and mobiles to help keep active.

Hi Below are details of a research study being carried out at the University of Sheffield. If...

To those who have COPD

Let me just share this experience of mind the moment that i was diagnosed with COPD im only 27...
jinsummer01 profile image

Grandad has COPD

Hi All, I'm new here! I just want to get some advice mainly on people's experience with COPD and...
Danielle2419 profile image

Do COPD sufferers have to wear masks?

Can anyone more knowledgeable than me tell me where I can find out whether extreme COPD sufferers...
QuietLad profile image

COPD exacerbation survey Have your say

Last chance this week to have your say and help us Identify the research priorities for COPD...
Tburg profile image

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.