Carbocisteine: I have been given this... - Lung Conditions C...

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Carbocisteine

Diver6 profile image
20 Replies

I have been given this by my doctor today for my chronic cough and thick phlegm which is causing me to loose my breath and can’t breath, has anybody else had this and has it worked for you.

Today was the first time that the doctors have listened to me, and it made me quiet emotional.

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Diver6 profile image
Diver6
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20 Replies
Patk1 profile image
Patk1

Yes it's frequently prescribed to thin mucous & mKe it easier to cough up.ru familiar with lung clearance techniques to get it up

Diver6 profile image
Diver6 in reply toPatk1

hi no I’m not, it’s the first time that the doctor has listened sympathetically to me, I have a chronic cough that I’m seing a respiratory doctor, but he hasn’t helped at all.

Patk1 profile image
Patk1 in reply toDiver6

Ask to see a respiratory physio who will teach you.meanwhile read up on asthma Lung uk website, on lung clearance techniques- acbt,huffing technique.there are videos too.with having mucous,carbocysteine will thi it so need to get it up,perhaps twice a day.itll help reduce coughing and put u in control.just relax doing it.i use plastic cups,tissues and nappy bags - u can see how much,colour and consistency.i spose we all have our own way.x

KaraKim profile image
KaraKim

Yes, I've been prescribed them for COPD mucus. Sometimes they make me sick so it's a balancing act, when I'm on a flare up & on my rescue pack the Carbocisteine on top makes me really unwell so I try not to take too many meds at once, whatever they are.

Always find a few biscuits in the morning line the stomach so sicking isn't so frequent. But that's my issue with meds, many make me heave, like strong painkillers. But moving the phlegm is hard and I often choke so why Carbocisteine was prescribed. Do try breathing exercises and keep calm - being emotional and afraid can make the choking harder.

rosco59 profile image
rosco59

I’ve been taking it for 18 months. I’ve had no side effects and it certainly helps, particularly with lung clearance. As Patk1 says, I would ask to be referred to a respiratory physio and in the meantime look at huffing techniques on line. I hope the medication works for you.

Seagullcity profile image
Seagullcity

Hello Driver6, I’ve been taking carbocysteine for a few months and they’re really helping me, but be aware it takes a couple of weeks before you’ll notice any effect. Previously, I was producing such thick phlegm that I felt I constantly had a dead slug stuck in my throat, and I couldn’t get anything to move. The carbocysteine, together with Mucoclear 3% now means that the gunk is thin enough to move upwards from my lungs. Sounds like you need to get control of that cough though and see a specialist, as others have advised. Good luck and I hope things improve for you.

Diver6 profile image
Diver6 in reply toSeagullcity

Yuk dead slug, but yes I know what you mean, I’ve been on it 3 days and feeling the benefit already. The cough is doing me in, I’ve had that many tests and except for a few things ie, little marks on lungs, thinning of osophegus and hiatus hernia, remulatologist likes to tell me these things but that’s it, doesn’t tell me anything to make myself better.

I’ve been outside this morning tidying garden and my husband said I hadn’t coughed once, but soon as I came in and sat down I started coughing but no phlegm thank goodness, I’m going to mention to him that I get really bad when I sit down, maybe something to do with bending to sit, I will try anything to get better.

Diver6 profile image
Diver6 in reply toSeagullcity

Thank you x

PaulineHM profile image
PaulineHM

Hello,

Sorry to read about your cough, exhausting isn’t it ?

I have taken Carbocisteine now for 8 years or so. The maintenance dose is 2 x twice a day. ( morning and evening) During a flare up then I increase the dose to 2 x three times a day. I increase my fluid intake of water and practice mucous clearing methods to try to shift it.

The Carbocisteine does take about 10-14 days to begin working. Just so you know.

Hope you feel better soon.

Go well.

Pauline

Diver6 profile image
Diver6 in reply toPaulineHM

Thank you Pauline x

Eccles44 profile image
Eccles44

Hello, I've been on Carbocisteine for several years now although I'm guilty of not always taking them as I should, they really do help me bring up the gunk. I've not had any side effects from them. I take 2 x 2 a day and increase to 2 x 3 times a day when I need to. They really do help. I hope you find they make things easier for soon.

Lee_Scoresby profile image
Lee_Scoresby

Yes. It works for me and many many others.

Nor12 profile image
Nor12

Hi. Yes I've been on it for 3 years, I have emphysema and bronchitis . Yes it can make you cough but you shouldn't get breathless unless you have asthma maybe.. !? Tell your doctor. The whole point of carbosistine is to clear your chest

JJ_7 profile image
JJ_7

Hi Driver. I have taken Carbocisteine for a few years. It has been very helpful in clearing my chest. Please ask your GP to refer you for Pulmonary Rehabilitation where a combination of excercise and chest clearance methods will be taught. Cant recommend Pul Rehab enough...really helped me. Good luck Driver xxx❤️

deejames profile image
deejames

Drinking lots of water frequently is important for thinning mucus which makes it easier to cough up.

Alberta56 profile image
Alberta56

Agree Pul Rehab is very helpful.

lesleyfromkent profile image
lesleyfromkent

Unfortunately carbocisteine didn't work for me. I ended up presenting at A&Es all over Kent with mucus pouring out of all head orifices. Eventually, after ruling out stroke each time, they CT scanned me, my sinuses were totally clogged up with mucus, all of them, and it had become infected. Resulted in a FESS - and I still haven't been offered physio to clear the mucus, or had anybody interested in where/why all this mucus came from.

I offer this only for what it is worth - my story, it happened to me 2022/23.

Bardear profile image
Bardear

have been on carbocisteine for a long time roughly 3 years. It helps but nothing really clears the phlegm. i suggest you drink plenty of fluid which can help. If breathing gets too bad after coughing - do you have asthma/COPD. Just a thought Or perhaps you are allergic to something. Tests are available for asthma,COPD and allergies.

Seahorse1a profile image
Seahorse1a

Good morning. Yes, I take it 3 times a day and it seems to work for me. If I miss a dose I certainly know about it. I've been on it for 3yrs and it really helps. Hope this helps!

chocklate profile image
chocklate

Hi Diver6 yes it really helps. to thin the mucus to help the cough. I am 75 yrs and use it when I need it

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