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Cpap and bronchiestasis

Homer12 profile image
9 Replies

hi

I have bronchiestasis and severe sleep apnea and I'm just wondering if anyone else suffers from both and have they felt any benefit with a cpap machine during the night

I've only just started the cpap therapy

Thanks

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Homer12 profile image
Homer12
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9 Replies
peege profile image
peege

You may have missed this post yesterday, someone who's had good experience with cpap.healthunlocked.com/asthmalu...

Homer12 profile image
Homer12 in reply to peege

thank you

janedivney profile image
janedivney

Hi Homer! Snap 😊I have severe bronchiectasis but only negligible sleep apnoea. However I do have EDAC as you can see from my post yesterday (thanks peege ). It took me aaages to get used to the C-PAP, and I tried 4 different masks before I hit on one which fitted ok and could cope with my restlessness in bed 😂But it’s been so worth it, I wouldn’t be without it now!

One thing I’m obsessive about is washing it all - mask, frame, hose and humidifier- every day. I’m already colonised with two horrible bacteria, plus I have aspergillosis, so I have to be very careful.

If I can help at all, please let me know x

Homer12 profile image
Homer12 in reply to janedivney

Thank you

Patk1 profile image
Patk1

I'm on bipap ( which is pressure on inspiration + expiration too).I've been onit for about 8yrs for type2 respiratory failure.i definitely better using it.i do sometimes take it off if it's leaking in middle of night,but I regret it.See how u get on.there are plenty of masks to try. If it doesn't help,they may need to adjust settings x

Homer12 profile image
Homer12 in reply to Patk1

Thank you

tomc profile image
tomc

I have been taken off Cpap in favour of the Apap

Basically the same as Cpap except it automatically adjust the flow of air to your lungs.

On my last assessment, I stopped breathing 27 times in 3 hours.

The only thing is, I sleep in my chair when I wake up for about an hour/ still unable to watch the end of films/// but I am a lot healthier looking.

I would have said better looking but, that machine has not been invented yet.. 🤣

Homer12 profile image
Homer12 in reply to tomc

lol Thank you

Germantara profile image
Germantara

Sorry can't help with that but hopefully you get replies

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