oxygen

[les4560]

I have posted before about my doctor telling me there was a trace of emphysema that showed up on my ct-scan, wont know any more than that until next week but I was wondering my stats drop all the time sometimes I use my inhaler but not very often but does everyone with low blood oxygen levels have to be put on oxygen?

[stone-UK]

Hi

The only sure way is to ask for a referral to the respitory team for oxygen assessment.

GPs no longer responsible for oxygen administration.

Mine was a walking test oxygen desaturation was 83% with oxygen maintained 90/92% which is acceptable.

[les4560 in reply to stone-UK]

thank you for responding yes I have an appointment with my pulm0nolagist the 5th-i am just so scared and trying to get any information I can to hang in there until my apt.- it is so scary not knowing any thing!

[les4560]

thank you RedSox-i think Jodi is right im just getting more scared because its almost time for my apt. and I have been waiting since early December!

[jmsutt73]

Hi Les, Only when I walk far or fast, my oxygen saturation drops to low 80's. Diagnosis is bronchiecstasis due to whooping cough and double pneumonia when I was 8 months old, plus minimal volume loss in base of both lungs due to damage also from that long long ago illness. At now age 75, one can imagine how difficult it has been to accept that diagnosis as fact. I do now, when looking back and recalling as a child how I could never run very far, never so far as my sis, which is likely the reason my mother told me about the whooping cough and pneumonia illness that I had once had. Over the years, I suppose that I became accustomed to my body being as it was, and I just never thought about what my mother had told me about that illness, not until I got older and became aware that my oxygen was dropping and was forced to learn why. So I have this illness that causes my oxygen to drop, and oxygen supplementation is the medicine that I have to use to keep the good health that I still have. Oxygen deprivation can cause major organ failures, kidneys, pulmonary hypertension, all sorts of additional problems that using oxygen can prevent. At first I didn't see it quite the same as now. Since I began using oxygen my quality of life has improved. I can walk much farther without tiring, and I feel freedom from worry, knowing that the oxygen is preventing further unnecessary damage. Best wishes for a good outcome at your medical appointment. J

[Leetorr in reply to jmsutt73]

Do you cough up blood with your bronchiectasis and is it mild or moderate?

[jmsutt73 in reply to Leetorr]

My pulmo says that my bronchiecstasis is mild. I have never coughed up blood. I have several 'mild' lung issues that together, according to my pulmo, cause me to need supplemental oxygen when I walk far or fast.

[lKeith]

les4560

Hi, I am waiting for an oxygen test for very much the same reason, I have already been told from an earlier test that I MAY need oxygen for movement & exercise, there is a name for it which I have forgotten. I am now in line for a second follow up for the same symptom. I am of the opinion that you do not need constant oxygen only for the exertion.

Stay at rest it appears you don't need it.

It does help your recovery when you have done something that has exerted you, walking up stairs for example.

IKeith

[les4560 in reply to lKeith]

thank you ikeith I hope you find something out soon I think the waiting is a big problem in just itself any way it is for me,i will find out more when I see my pulmonolagist Tuesday and boy it cant get here soon enough-but I do wish you well and have a wonderful day!

[Hidden]

How much does it drop too. You can discuss all of your concerns including this with your consultant..not long now

[les4560 in reply to Hidden]

thank you sweety yes I will find our a lot from my pulmonlogist,and my stats will some time drop to 84 but never stays just pops up into the 90 but-thank you for asking-scary but will no more soon!

[Hidden in reply to les4560]

Is that when you are walking .are your fingers cold when you test your oxygen. One of the respiratory nurses said if my fingers are cold I could have a low reading.

[Hidden in reply to les4560]

Remember to write down what you want to ask so you remember

[les4560]

thank you Emily-yes I write everything down,thank you-but no I never thought about my fingers being cold when I checked my oxygen levels ; I will remember that!