niberliser

[Elsie1930]

hi just started 0.9saline niberliser has anyone had good results with it said trying me on low first.found the long term antibiotic had started to work better but still colonizing bugs .have a few conditions not been back to work since march now after seeing me a few times in meetings they have decided to put me in for retirement through ill health after two health reports so now something new to worry about hope everyone is getting on ok thanks

[Chip_y2kuk]

I have 6% saline twice a day and also long term azythromycin 3 days a week

0.9% saline is isotonic which is unusual from my understanding they normally use 3% or 6% hypertonic saline .... can I ask what the saline is being used for?

[Hidden in reply to Chip_y2kuk]

0.9% saline is the usual strength to loosen mucus in bronchiectasis. Stronger doses were brought in first for copd patients who tend to have thicker and stickier mucus. Some bronchs now use stronger saline. I tried stronger doses but they caused my lungs to react. 0.9% is much kinder to me.

[Chip_y2kuk in reply to Hidden]

Yes they told me the stronger saline could cause respiratory problems... they actually made me do my first in hospital "under exam conditions" .... spirometry before and after the treatment to ensure my fev1 didn't drop (it didnt)

[Hidden in reply to Chip_y2kuk]

They always do this with nebbed antibiotics also. The problem is that I have never had my lungs spasm during the test. It takes about 3 weeks for my lungs to react. Some people don't have this problem. If 0.9% loosens the mucus better to stay with something more gentle. I'm sorry but I don't see in your profile that you have bronch only asthma. Have I missed the bronch?

[Elsie1930 in reply to Hidden]

Yes i have bronchiektasis swallowing problems diabetes and osteoarthritis back pelvic hips knees and shoulder he did say next highest can be done at home but if higher in hospital for first one thanks

[Hidden in reply to Elsie1930]

I was actually asking Chip as I could only see asthma on their profile. I hope whatever you use helps you.

[Chip_y2kuk in reply to Hidden]

I've got EDAC too

[Elsie1930 in reply to Chip_y2kuk]

To make thick mucus easier to come up hoping to stop chest infections from reacuring

[Chip_y2kuk in reply to Elsie1930]

Ah, have you tried carbocistine? .... thats only purpose in life is to make mucus easier to move

I take carbocistine, Hypertonic saline and have respiratory physio techniques to help move all of the mucus .... it certainly has started working I'm currently (touch wood) at 5 months without an infection .... previously I would go 2-3months

[Patk1]

U shld get enhanced pension frm work.also look into dss benefits maybe entitled to.0.9 saline shld help thin mucous and loosen it so u can get it up. I don't know if u have seen lung physio - lung clearance is the mainstay management of bronchiectasis.if Yr notfamiliar with it,there's info& videos on aluk website

[Elsie1930 in reply to Patk1]

Yes had lung clearance, breathing techniques and flutter pipe etc thank you

[Patk1 in reply to Elsie1930]

That's gd.if saline doesn't help enough,prescription carbocysteine capsules thin it.i like to gently tap lungs ( percussion) during acb,anything that helps get it up!I'm on 7% hypertonic saline x

[Shonkie]

I found the saline nebuliser helpful at first but be a little careful. Over some months I found it damaged my throat. I became hoarse, coughed more and ended up having to have my throat investigated. Not good!

[Elsie1930 in reply to Shonkie]

oh dear I always have a hoarse voice so i hope it doesn’t get any worse thank you

[JJ_7]

Hi Elsie. I am on 0.9% Saline with salbutamol up to 4x24. It does help to lossen and open up the airways. I also take Azithromycine 3x7. I haven't experienced problems and wish you well with your treatment. Good luck XXX

[Collienut]

I'm on 0.9% saline, up to four times a day, but usually only manage twice a day. I was on hypertonic 6% for a while but the lung spasms got worse and it was getting scary, I just scraped through the test to be prescribed it, so went back to the normal saline. It helps a lot, if I miss doses I do feel more SOB and congested. If I think I'm getting an infection I up it to the 4 times a day.

[Timberman]

I too was retired early and it did come as a bit of a shock. Then I started to wonder how I ever found time to go to work. Better now I am 80 but I reckon retirement is great.

[tomc]

My philosophy is, When one door closes, Another door opens.

You have a lot going on (As do I) but you have to stay positive and find what other there ios for you to do.

Stay positive and live your life,,,, 👍🌞

[Elsie1930 in reply to tomc]

Thank you ,think the changing things over has just got me down can’t work internet , password etc wording stuff ,but one off my daughters has come to help me with universal credit so 1 down a few to go

[tomc in reply to Elsie1930]

Good to hear from you Elsie.

Go for ALL the help you can get and are entitled to.

Tom.

[Topsy-Turvey]

I have brochiectasis, take the carbocistine amongst other meds I used to have my meds through a nebuliser when asthma bad, out of control.Following a prolonged bronch flare up and weeks of antibiotic and steroids, I have discoverd hyperbaric oxygen therapy. Its an hour session 3x per week. Im hoping to get to the point where Im down to 1x week.

I plan to discuss with my consultant at my next appointment. So far so good.

What I have realised is that there is very little scientific research out there for Bronchiectasis.

[ILoveCyndi in reply to Topsy-Turvey]

I've been curious about hyperbaric oxygen therapy. My pulmonologist has said that any benefit would only be while undergoing the treatment. If you have a different experience and have lasting results, please let us know. Thanks.

[Topsy-Turvey in reply to ILoveCyndi]

I will do. I had 5 sessions in the tank but due to to root canal dental work spread over 4 weeks, I wasnt allowed in the tank. Ive had an hours oxygen via a concentrator. Whilst there are imediate benefits, they have indeed been short term. On Monday I am back in the tank, Im reliably informed that it is being put under pressure that is the added benefit; my friend had her eureka moment after 15 tank sessions. x

[ILoveCyndi in reply to Topsy-Turvey]

thanks for the update