Pulmonary Fibrosis

[Alberta56]

I thought that members with Pulmonary Fibrosis might be interested to know that in their latest newsletter ELF, the European Lung Foundation, mentioned that they have just brought out a booklet, Pulmonary Fibrosis: a supportive guide. Elf do splendid work for people with bronchiectasis, so I hope this is good news for PF people.

[peege]

Very thoughtful of you Chris , there never seems to be much info about for people with PF or IPF

[Alberta56 in reply to peege]

It seems to me that PF and IPF are some of the Cinderellas of the lung world.

[peege in reply to Alberta56]

Years ago (must be over 9 years because I was still in Wimbledon) I was listening to the brilliant radio 4 programme Here's Health. It was on respiratory disease and respiratory consultant was talking, he played recordings of what they hear can through the stethoscope. The four I remember were the crackles of infection, rasping/scraping noise of pleurisy, PF and squeaking of asthma. It was so informative and is possibly on BBC Sounds now, for a while I used to go back to the programme on BBC iplayer.

[helenlw7]

I had a telephone consultation with my lung consultant to discuss my last ct scan before I was hospitalised. He says I have scarring that could be IPF. My brother has it so I’m really worried. I have to have another scan in the next week or so.

[peege in reply to helenlw7]

To the right helenlw7 (or scroll down if you're using a phone) there are the 'Related Posts ' . You may find some helpful information amongst those. Arm yourself with as much info on PF/IPF as you can so you can ask questions of the consultant when you get to speak to him/her. There's the helpline too for guidance on questions to ask. Good luck. P ××

[helenlw7 in reply to peege]

Thanks for your help.

[peege in reply to helenlw7]

europeanlung.org/wp-content...

[BronchyBronwen]

Thanks so much! As a bronchy, I hadn't heard of that, so much appreciated.🙂👍🌺🌺

[Gma61]

Whete would we find the information to read please? Thank you

[peege]

europeanlung.org/wp-content...

[Hazel-mary]

Hi thank you for the information Where is it possible to read this please

Hazel x

[Alberta56 in reply to Hazel-mary]

Peege has posted the contact details-just above your post. xxx

[Hazel-mary]

thank you so much. Xx