Thank you!

[Lynnetp]

I just wanted to thank everyone who has commented on my post about Oramorph.

I hope I have replied to everyone but if I’ve missed you, I’m sorry!

My mind has been put at rest and I’ll give it a go 😊

[Lucylungs]

Hi Lynn. Re your recent post on oramorph, I have end stage Copd and share many of your issues, plus crohns disease and osteoporosis so have a lot of pain and have been on various opiates all my life. I think if you stick to as low dose as poss it is okay as I now have such a tolerance that nothing works... However, be careful with oramorph if you're having real trouble breathins as it has caused me respiratory failure by surpressing breathing during an exacerbation, although I was having one a month exactly 29 days apart and ended up in resuss 3 times in 3 months recently. Very scary. I haven't had another episode despite taking oramorph since I stopped hrt and smoking. I do avoid certain foods anyway because of crohns but have read an awful lot about dairy exacerbating mucus overproduction and cutting that out is really easy to do and well worth a try, as are antihistamines. I am allergic to carbocysteine unfortunately. Nice to connect with you as we relatively young ones are quite rare to have such severe issues. Hope this may help in some way.

[Lynnetp in reply to Lucylungs]

Hi Lucy, thank you for sharing your experiences. I do hope you’re ok at the minute. You’ve certainly been through some awful times. Good for you for giving up smoking 💪 That can only have a positive effect on your health.

I will be mindful not to increase doses of Oramorph during exacerbations, it certainly sounds like you had some scary episodes.

Thank you so much for your advice

Lynne x

[Jansy16]

Reading all the comments on here about Oramorth, I'm going to ask my Dr if I can take it as I have severe COPD & extremely breathless & hoping it will help me. I would like to know how you get on with it & if it helps your breathlessness. Good luck. xx

[Lynnetp in reply to Jansy16]

Oh bless you! I hope you are able to try it 😊

[paco19613 in reply to Jansy16]

hi ive been reading your posts on oramorph & was wondering if you managed to get it prescribed by your dr and if so how are you getting on with it ? thanks x

[Lynnetp in reply to paco19613]

Hi Paco19613, I never actually took the Oramorph that had been prescribed for me by my COPD team. Sorry I’m no help.

Lynne x

[paco19613]

hi ,i’ve been reading your post on trying oramorph and was wondering how you are finding it as i’m thinking of asking mr dr for it as i’m severe emphysema ,

thanks