CAYSTON

[Lapis5]

Am going on 2nd week of IV Ceftedine in my port for colonized Pseudomonas. Still very sick, no better. My Pul dr. wants me to start Cayston nebulized 3 x day. Not looking forward to this.

anyone doing this and feeling better?

[GintyFerguson]

Oh, poor you. At least these treatments are not painful. Try to eat , sleep and hydrate well. God bless.

[Lapis5 in reply to GintyFerguson]

Have u done this?? Did u use saline nebed first or what? DID IT HELP[ A LOT IS IT WORTH IT?

[GintyFerguson in reply to Lapis5]

Sorry if I mislead you. I have had iv antibiotics for two weeks and I did thatbat home . Never nebuliser. When you ask if it is worth it what is the alternative? My GP says if I didn't take my inhalers I'd be a 'respiratory cripple'. Unless you have come to your end of the road it is always worth trying something new . You can always choose to stop. Go for it!!

[Hidden]

Lots of us nebulise antibiotics long term to keep down the pseudomonas numbers after IV has hit it on the head. The favourite at the moment seems to be colistin. If you have been offered cayston to nebulise you are lucky. It is an antibiotic called aztreonam and is only available in the UK to those with bronch as IV under special circumstances. Last time I asked it is not available to us as nebulised. Only offered for nebulusing to those with cystic fibrosis.All antibiotic treatment is 'suck it and see'. Everybody reacts differently. I have nebulised 6 different antibiotics over the last 35 years. Some worked better than others but now my lungs go into spasm when I nebulise antibiotic so it's oral cipro or IV meropenem. It's a pain having to get into the routine but it could really improve your quality of life.

[Lapis5 in reply to Hidden]

How did u receive that medicine as i thought it is only nebulized? How did it work for you? Not sure i understood your post. Did u take this drug or not?

[Hidden]

I know someone who had IV aztreonam in UK. I have not needed it yet. The other antibiotics which I have nebulised have been supplied by the hospital on the orders of my consultant. Aztreonam is not available to nebulize in the UK for those with bronchiectasis because the government won't fund it for us. At least that was how it was last time I asked.

[Lapis5]

Guess no one can tell me how they did on it . but thanks for getting back to me.