I'm new here, Oxygen when going out and about

[torcamp]

I have just been discharged from hospital and my long term oxygen has been increased to 8 LPM when resting and as needed from 10 to 15 LPM when doing any movement.

I can no longer have a conserver on my oxygen when moving with my ambulatory cylinder in a carry bag, so oxygen only lasts 45 mins.

Is anyone else on this high flow oxygen amount, if so how do you manage to go to appointments or get out.

I have Emphysema, pulmonary hypertension/fibrosis and right sided heart failure due to the pulmonary hypertension.

Can anyone help so that I can get about more freely without having to take so many oxygen cannisters.

Thank you

[Hacienda]

Morning Hun, Welcome to The forum. You are on high Litres. Do you have an Respiratory/ Oxygen Nurse? She would be able to arrange for you to have Ambulatory via a Compact Conserver, I have a shoulder bag size Inogen One G3, mine is a small one that allows me to reach my 3/4 litres on Moving. This last about 3 hours , can be charged up in the car, I have not had "Cylinders" for many Years. My Home Concentrator is Continuous can go up to 15+ lts, which I don't need it that high. I am sure Someone will come along with updates on a Higher Ltr intake than me. I wish you Luck, It was my Resp., Nurse at Rehab who initially organised my " Shoulder Bag/Pulse Flow" Go Direct to them. Best Wishes. xxx C.

[torcamp in reply to Hacienda]

Hi Hacienda

Thank you for your reply.

My high flow oxygen means that I cannot have the Inogen one as they do not go that high. I did have one when I first started to use oxygen, but now they do not make them to do high flow.

I also cannot have a conserver as the oxygen flow is to high.

Just thougt someone out there may have high flow and have a solution I have not thought of.

My sons wedding is coming up and I would like to attend but not sure how I can achieve that goal at present.

Thanks again for your reply.

torcamp

x

[Jomo46 in reply to torcamp]

I recently went up to 6 on my inogen so that is. The top figure. I asked the nurse what next and he said liquid oxygen. You have a tank at home and fill bottles up which I think he said would last 45 mins. He said most people fill a lot up and put them in the car for a day out. It might be worth looking liquid oxygen up as I can’t remember the details, but he seemed to think I could manage a weekend away with a conserves at the hotel and these liquid oxygen bottles

Xx jo

[torcamp in reply to Jomo46]

Hi

Thank you for taking the time to post a reply.

I have not been offered liquid oxygen but I am going to check with my respiratory nurse to see my options going forward.

Thank you