New kid on the block😎

[Suzie42]

I am 68 yr old female newly diagnosed with IPF, missing my holidays and grandchildren. Bored with everything

[sassy59]

Hi Suzi42, things are changing weekly it seems. Hoping you will see your family soon. Do what’s right for you and your wellbeing.

Thinking of you and others in a similar position. Xxxx😘

[Suzie42 in reply to sassy59]

Thanks sassy59 for your kind words

[sassy59 in reply to Suzie42]

You’re most welcome. Take care. Xxxx

[CDPO16]

Hi and welcome. I don't have grandchildren and have had to cancel a summer holiday, which I'm not too upset about. I too am bored with everything. Even my usual past times have become monotonous. Really missing trips to garden centres, which, as I'm shielding, are still a no go.

Hope you are able to see your family soon.

[Suzie42 in reply to CDPO16]

I've cancelled 2 holidays so far and my husband is cancelling our Sept break to Greek Islands as I wont feel safe to go. Missing garden centres too, I love my garden, but too hot to go in it today

[Hidden]

Welcome to the club Suzie. I’m 68 too. Yup, every day is the same! But the real tragedy is, many of us have life-limiting conditions & time is too precious to waste away from our loved ones. I’m now seeing my little granddaughter weekly, in daughter’s garden. I just couldn’t cope any longer without seeing them, getting too depressed.

[Suzie42 in reply to Hidden]

Yes I know what you mean, I just want hugs with them. Thanks for you message

[Hidden]

Welcome Suzie, generally just missing going out and about without a care.

[Suzie42 in reply to Hidden]

Yes too true!!!

[peege]

Welcome Suzie42, I'm sorry to hear about the ipf. There a just a few participating members with it. P

[jmsutt73 in reply to peege]

Hi Susie42, Fellow IPF traveler here. Yes, old C19 is the pits. Oldest two grands are now at University; one of G-son's fellow frat roomies tested positive just before G-son was to come home for a couple of days. It is difficult for all, and particularly for those of us with 'underlying conditions." Hang in there... J

[Suzie42 in reply to jmsutt73]

Thanks for that Jmsutt73. I've stopped taking Ofev for a few weeks as ALT levels were high, they are giving me 100mg to try after blood test next week. How are you getting on with it

[jmsutt73 in reply to Suzie42]

I began taking Ofev this past February 12th., and so far no problems. Blood work has been good. August will be my last monthly blood work then I go to every three months. I will have a high resolution cat scan and pft the last of September to see if it is working. It is a tough diagnosis, as are most for those of us on this site. Just be sure to avoid anyone who is sick, particularly during this C-19 pandemic. Make sure that your Vitamin D levels are at least 80, keep that immune systems at peak performance. Will keep you in prayer. J

[Suzie42 in reply to jmsutt73]

Thank you very much. Hope you keep well for a long time to come

[Cade1]

Welcome to the group Suzie

[Damon1864 Volunteer]

Hi Suzie42 and welcome to the site. I can't wait to see my grandchildren but have decided to wait and see how things go when the shielding is lifted and I think it's safe. Have a wonderful day and take care 😊 Bernadette xx xx 🌈

[Suzie42 in reply to Damon1864]

Hi Bernadette, Its hard to know what to do and if its right or not. Im finding strength communicating like this and its helping me big time. Thank you. Jill xx my first dog was called Suzie

[Damon1864 Volunteer in reply to Suzie42]

Hi Jill my little dog is called Jack and yes he is a Jack Russell have a good night and take care 😊 Bernadette xx xx 🌈

[Kimlu]

Hi Suzie, welcome. Don't know where I'd be without these lovelies on here, I'm pretty new myself and things are taking a bit of getting used to. Hope things improve for you soon, keep safe xxx

[Suzie42 in reply to Kimlu]

Thank you Kimlu, I cannot believe all the support im getting, wish i had found this site before. Take care

[Kristicats]

Won’t be for ever. Stay safe.

[Hacienda]

Hi Suzie & Welcome to This Great Forum. Sorry about your recent Diagnosis. So many of us in the same Boat Hun. I too am 68, but most of mine live in Spain. I can't Fly there & never will, So I await till it is safe for them to come Here. I also have two Great Granddaughters, the Youngest at 16 months Thinks I live in a Phone, kisses the Screen, my Heart melts.

I will miss my other Granddaughters wedding on October 3rd, we had Plans made for her & Her New Hubby to come to us with the rest of the Family, as we had arranged a " Blessing" then I would see her in her Wedding Dress for Real. She has not had to cancel her Wedding in Spain, But we have had to cancel The Blessing.

With Technology being so Great, I shall Watch her and my Baby Bridesmaids on a Video Link. The Tears will Flow as you can Imagine. You will have a most Loving time once your all together, Cuddles & Kisses Galore. Stay Well as you can, Stay safe. We are always here Suzie. Love n Hugs. Carolina. XXXX

[Suzie42 in reply to Hacienda]

Wow Carolina, what a reply. I dont feel sorry for myself anymore i feel sorry for you. You are in an unberarable situation. I am fortunate that my 2 children and 2 grandchildren arent too far away. I can still get on a plane when safe to do so and i can walk in the orchards that run behind our property. Yes technology is good now and you can get some enjoyment from it im sure, we watch my sister in laws funeral last Fri and it was like we were with them. Wish it had been a wedding instead. Thank you for a lovely message I really appreciate it. Take care and love n hugs to you too. Jill xxx

[Hacienda in reply to Suzie42]

Please don't feel Sorry for me, I am a Strong old Bird, I thought A Lift for you was necessary at this Moment. But Yes, we overcome our Downs on Here, all here to support each other and lift each others Spirits. Stay well Jill. So sorry about your Sister n Law, but you felt you where there. Take care. C. XXXX

[Suzie42]

To tell the truth if i was in your position i would be terrible, not strong enough i think. I will have to toughen up. You really did give me a huge lift and thank you for that. Take lots of care. Jill xxx

[HungryHufflepuff]

Hello and welcome. I'm sorry to know about your sister in law. It's a surreal time. Sending you lots of good wishes.

[Suzie42 in reply to HungryHufflepuff]

Thank you very much

[aunttomany]

hi suzie i also have ipf i know how you feel. it is very hard to get interested in anything. i was diagnosed last year and it's been a roller coaster. i hope you will start feeling better when you have had time to take it in. please talk at anytime sometimes just makes you feel a little better knowing your not alone. take care.

xx

[Suzie42 in reply to aunttomany]

Hi aunttomany

Can you tell me if you are on treatment and how its going. I am meant to be starting in next week or two. Thanks and take care xx

[aunttomany]

hi suzie i'm taking steroids and mycophenolate not one of the typical pf drugs as my pf will not respond to them. because of lockdown i don't know if there really doing anything. i am also on oxygen.

[Suzie42 in reply to aunttomany]

Thanks for sharing. I will be started on ofev, i hope they will work

[Izb1]

Hi Suzie42 and welcome to the site. I am sorry to hear you are feeling down, but you have had alot to cope with. I think being new diagnosed takes time to come to terms with no matter the illness. Going through this current situation with this virus is getting us all down and worse losing your sister in law must have all had a bad effect on you. Missing family is terrible, my daughter lives in Cardiff and I cant get to see her just yet. But things will get better we just have to remain postitive. I am sure there are plenty of people on here with your disease that can give you some good advise which always helps. Take good care and stay safe . Irene x

[Seapop-in20]

Hi Suzie42 I’m new to this site also and have been In isolation since Feb... it’s hard but we have to do this - it’s just something else to tolerate! I miss seeing and having my family stay over too ... must keep strong .. I find gardening and exercise are helping me through I joined Les Mills online to help ... and work online starts home so keep the old brain cells active! I’m hopi h this site w

I’ll help when we have our downtime blues ...

[Suzie42 in reply to Seapop-in20]

Thanks for your comments...appreciated