Hi fellow sheilders 5 years ago I was unlucky enough to pick up a coliforms infection in my lungs,having chronic lung disease my body just couldn't get rid of it and it colonised in my lungs,it was awful leaving me tired all the time and couldn't find an oral antibiotic to get rid of it and went through a range of iv antibiotics to try and fight it but then it got into my kidneys and for almost 4 years I've been in pain that is ramping up with each flare up ,I'm basically on 2 week courses of antibiotics and a nightly preventative antibiotic which have never worked and my doctors have tried many different antibiotics,since last year I'm not getting any relief from symptoms,the pain is so terrible,I'm on my sixth course of selexid(pivmecillinam)and nitrofurantoin at night in 7 weeks,the pain is unbearable,and I was just a few days from my appointment with urologist when covoid 19 hit our world,so the last place I should be is anywhere near a hospital or a foot outside the door,as I have multiple comorbidities.
I know I was referred by a consultant in the hope urology would consider me as a candidate for interversical gentomycin treatment,its a fairly new form of treatment and was wondering has anyone had any experience of it or know anything about it.
I feel so selfish for even thinking about this,but I'm absolutely exhausted and having managed to stay on my feet all these years with the help of my oxygen and rollater,I'm now being referred for a powered wheelchair and the feeling of relief as I have only been out of the house excluding hospital visits or admissions I have only been out of the house 2 or 3 times,so I have been feeling like I'm in solitary confinement for a long time,if anyone knows anything about interversical gentomýcin treatment I'd be so grateful
Take care everyone,stay safe,stay home and I hope you'll be outside in the sunshine in not too long,and my gratitude goes out to my brave carers who are still coming to my home and to all the nhs staff and the people working in the supermarkets ,good luck everyone ,I wish you all so well,🌈🌈🌈❤❤❤