Do I need to contact somebody - Lung Conditions C...

Lung Conditions Community Forum

55,848 members66,507 posts

Do I need to contact somebody

gaffers profile image
4 Replies

Hi

I have emphysema and I am a full time carer for my wife, I have pure or non obstructive emphysema struggle with sob and blood oxygen low after exercise my fev results are good 110% but my dlco is at 39% ct scan shows a loss of 60% lung surface area should I have received a letter? and if so who should I contact

Written by
gaffers profile image
gaffers
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Badbessie profile image
Badbessie

Contact your surgery. There are grey areas in the high risk group category.

Videodragons profile image
Videodragons

It sounds as if you should have received a letter. It tells you to stay in for 12 weeks.

look like us with emphysema are not getting this litter they must think we are no good to save

Grayjay profile image
Grayjay

I have Emphysema and received a letter yesterday.

Not what you're looking for?

You may also like...

How to follow request to change your e mail address - and have no worries that it's a scam.

First a lot of worry and speculation over e mail sent requesting a "password change" - I think this...

Cystic fibrosis

HiI was diagnosed with bronchiectasis at the beginning of the year, at the time it was mentioned i...

anyone having croaky throat problems with inhalers

i’m currently using Trimbow inhaler for COPD and unfortunately, I seem to be one in 10 people...

Blood thinners advice

Morning friends, on Thursday I had a third tachycardia episode - with the previous two my heart...

Autumn covid booster (anti-vaxxers please scroll past)

I just spotted this...