Confused

[Blaahh]

My azathioprine has been lowered to 150mg a day instead of 200and i take a steroid every other day . Feeling so good sometimes i forget somethings up, .I've found out recently it wasnt rheumatoid arthritis which caused the fibrosis /inflammation .Though i have loads of symptoms of it ? I actually hoped I would have it because then I'd have a diagnosis of some kind ? Reading peoples stories on here ,i feel I'll maybe get told whats wrong a few years down the line . I have a wee bit of fibrosis on my left lung along with inflammation that made me so breathless I thought I was dying ! Aza has got inflammation under control now which is amazing.I thought the fibrosis just inevitably got worse but the doc says thats not totally true ,everybody's different .So did the fibrosis cause the inflammation? Can a person have fibrosis ,not know about it and live a long healthy life? Aargh ,my heads puggled with it all .

[Oshgosh]

I feel the same.some things well never get the answer to to

[Blaahh in reply to Oshgosh]

That is the frustrating part ,the not knowing . Driving me insane!

[powderpuff in reply to Blaahh]

Elusive illnesses are nightmares, but I’m pleased whatever you have is responding to medication & that you can feel pretty well despite the lack of dx. 💐

[Blaahh in reply to powderpuff]

Thank you! Im usually an upbeat person but the uncertainty of it just makes the doubt creep in . And i love that ,my elusive illness 🤣cos that certainly what it is ! x

[Izb1]

The good thing is you are feeling good, nothing else matter x

[Blaahh in reply to Izb1]

Sorry just your your answer ! Yes thats true and im so grateful for that but i still have my teary moments thinking about dying and leaving my partner and kids . So morbid ! As we all do on here no doubt ! But i def think having a positive mindset helped me but that positivity only came when i started on the azathioprine and i started to feel better . Its hard to be positive when your world is crumbling around you .

And now this covid19 to contend with as if we havent all got enough to contend with!

Thanks for your reply and i hope your well x