Hello: I was diagnosed with COPD about... - Lung Conditions C...

Lung Conditions Community Forum

55,609 members66,308 posts

Hello

poetrylady50 profile image
13 Replies

I was diagnosed with COPD about 10 years ago. I am on oxygen 16 house per day plus for getting about with, I haven't been on holiday for about 15 years and would love to get away somewhere. Any tips please?

Written by
poetrylady50 profile image
poetrylady50
To view profiles and participate in discussions please or .
13 Replies

Hello poetry lady, welcome.

What kind of tips were you looking for?

If holiday locations, what sort of distance you want to travel your location to other parts of UK or overseas, for overseas travel with oxygen there are a number of posts, just type 'travel with oxygen' in the search box top right to search this forum. If you need more info on just that maybe phone the BLF helpline on Monday.

Have a great Sunday

poetrylady50 profile image
poetrylady50 in reply to

Thank you so much for your reply. I thought maybe to the seaside in the uk. I am so nervous in case I have no oxygen when I get there I have anxiety about it. I have an Inogen machine and realise my oxygen company would deliver it to my hotel. It is just the anxiety that holds me back I think.

in reply to poetrylady50

Perhaps once you have decided which location you fancy, just phone your oxygen supplier to notify them of the hotel should you need to call on them. I assume you are driving so that will make things so much easier. For me I like to head to the coast, but my maximum these days is 3 hours driving with a rest or 2 and an overnight stay. If I go for the day my absolute max is 2 hours driving but preferably no more than 1 hour 30 mins but ideally only 1 hours drive. If you mention where in the country you are North, South, East West, NE, NW etc people may be able to offer suggestions for you and how many hours you want to spend travelling etc.

A course of kalms a month before you travel may help, but if you are on anxiety meds already perhaps chat with your doctor about increasing the dose, if not advice on additional medication which may help.

I think once you have done it you will want to give it a go once or twice every year :)

in reply to

BLF's page - going on holiday in UK with oxygen:

blf.org.uk/support-for-you/...

poetrylady50 profile image
poetrylady50 in reply to

Thank you so much. I live in Gloucestershire. Your comments have been really helpful. I so want to go paddling! many thanks from Shirlz.

Thomac profile image
Thomac

My husband is on long term oxygen therapy and has travelled to several places in Scotland, London and. Just back from Northern Ireland. This has required o2 deliveries from many suppliers and they have always been there when we arrive, usually are there a few days before. This last trip liquid oxygen was supplied as well as a concentrator and spare tanks. We were nervous at first too but it’s well worth it. Happy paddling 😊

poetrylady50 profile image
poetrylady50 in reply to Thomac

Oh Bless you Thomac. I so want to get away somewhere to paddle in the sea. Your info has given me a lot of confidence. Many thanks. did you ever go self catering or just hotels?

Thomac profile image
Thomac in reply to poetrylady50

Both and both have been fine, you need to check the venue are happy to receive 02 but no one has ever had an issue and hotels are very used to it. We need to give our supplier, Dolby vivisol, two weeks notice for holiday O2 but they have organised it at short notice to allow Chris to join me on a work trip.

Carnival567 profile image
Carnival567

I am on ambulatory oxygen but the principle is the same. We have just spent two weeks on the Isle of Wight with no problems.

1. Decide where you want to go and check the facilities for your requirements. We usually book a cottage on one floor. If you have problems with walking check where the car can be parked.

2 Call your oxygen supplier and ask for them to arrange oxygen for your needs. Ask about a portable concentrator as Stone suggests.

3 Enjoy your holiday!

We live in the Forest of Dean and drove to Lymington for the ferry. 2.5 hours. Good luck xx

poetrylady50 profile image
poetrylady50

Thank you so much

joyce74 profile image
joyce74

We will be setting off tomorrow for a 3 night break at the coast. Checked with the hotel that they will accept my oxygen equipment and that has been booked via my provider Air Liquide. They also allow mobility scooters to be charged over night indoors. I give a weeks notice to Air Liquide and equipment will be set up when I get there. I also choose a resort that’s not too hilly. Hope you get a break soon. Will do you good

poetrylady50 profile image
poetrylady50 in reply to joyce74

Many thanks for the reply. It all sounds very encouraging. I hope you have a good holiday.

joyce74 profile image
joyce74 in reply to poetrylady50

Thank you sure we will

You may also like...

Hello

Meanwhile, I wonder if anyone who has been diagnosed recently with COPD is as scared as I am and is...

hello

averaging high 03 s at night and high 40s during day . We've a had a few fires but nothing...

Hello there

I was diagnosed with asthma October 2023 and struggling to control. My past issues with depression...

Hello there.

Hi everyone, it’s been a while since I posted. How are you all doing? I hope everyone is keeping...

hello I'm still ticking

quick update ,back in hospital , shouldn't have been discharged in the first place . I have wet...