Another warm one

[cales]

So if I want to do anything I do it in the morning because as the day goes on the more breathless I get , so fed up with feeling like this so hard not to be negative spend far too much time thinking about things I used to be able to do instead of concentrating on making the most of what I can still do , horrible horrible disease to have ...,,,,, sorry feeling sorry for myself today 😢

[HungryHufflepuff]

I think it's okay to feel sorry for yourself from time to time. Being positive all the time is exhausting. If you Go out with your arm in plaster everyone's going to feel sorry for you and give you heaps of sympathy but if you've got something unseen, well it can't be that bad, you look fine, pull yourself together. Sometimes you have to feel sorry for yourself because no one else is going to. But not for too long or it starts to eat away at you. It really sucks to not be able to do things anymore, but you find new things that you never imagined doing and which are equally wonderful in a whole different way. I hope you have a better day tomorrow 💐

[cales in reply to HungryHufflepuff]

Thank you for your lovely reply , yes fingers crossed for a better day tomorrow 😊 .

Hope your day is going well and your. enjoying the weekend xx

[gejay in reply to cales]

If I want to get anything done I do it in the cool of the evening with a glass of wine in my hand but I know what you mean, I too struggle with the weather and yes I feel sorry for myself most of the time. x

[Patsy164]

Hi cales I was feeling like that last week I couldn’t do much but what a week can do. I have been gardening for three days and was surprised how much I did if anything the exercise made me better. Obviously, we can never do what a normal person can do but sitting potting plants and light weeding is good for me. I certainly couldn’t have done it last week. I feel we can from time to time feel sorry for ourselves after all we would love to do what most normal people can do and to feel we are losing out is only human. I hope you feel better soon. X

[cales]

I have had quite a nice day just got back from my sons and decided to get a shower , big mistake got breathless then panicked had sit wrapped in a towel until I got my breath back I get so scared when this happens , I should have known better oh well worn out now so off to bed I go .....,, good night all and thank you for your reply’s and support today it makes a big difference xx

[JasperDylan in reply to cales]

Just a little tip when taking a shower

Always stand facing the shower head that way you never get the drowning feeling or panicky when taking the shower

Hope this helps

[cales in reply to JasperDylan]

Good thinking I will do this in the future , thank you for the tip 😊

[SquirrelsHolt in reply to cales]

Dear cales I totally get about the panic/anxiety that can often hit us when we're taking a shower etc. Its up there with my top 5 "dreads"! I think mine is due not to it being steamy and humid whilst shower is on. I'm lucky I've a big window I can open,an extractor fan(looks good but to be fair,not much use for me anyway). Then I tell my son I'm going to take shower and he knows to keep an ear out for anything unusual but also because I can leave bathroom door fully open so I'm giving myself as much chance as possible,to have good air ventilation. All that done and me sitting with the shower on me at a warm enough for me but any normal person would call it no more than just tepid,lol !

So many of us with poor old lungs and the conditions they can manifest into and before I know it,I'm having a panic attack or an anxiety attack - whichever, its the worst feeling. I mean too worried about getting into the shower,how ridiculous is that? Sometimes are easier than others but I've not worked out a foolproof way of having a shower without an almost compulsory " panic"!! Silly me,silly me!

[cales in reply to SquirrelsHolt]

Awe I feel for you but also is reassuring for me to know that I’m not alone with this ,sometimes even drinking out of a bottle if anything comes close to my nose and or mouth I panic because I convince myself it’s restricting my breathing 😳 crazy things especially when your logical brain is telling you that what you think is going to happen isn’t actually going to , if you get my meaning

Thank you squirrels xxxx

[SquirrelsHolt in reply to cales]

Spot on my dear,spot on!

[Shazrab]

Hi cales don’t worry about feeling sorry for yourself I’m sure if you read some of my posts you’ll find I do it also , I don’t want to but sometimes you can’t help it. I see people get on with their everyday life’s and sometimes I have to admit I feel a little down that I want the life back I had with my hubby . We lived an outdoor life it was great but I am trying to now cope and think right it’s time to think about what can I do ?? So take things easy take care of yourself and if you have a little cry for you st times don’t feel guilty. We never know what tomorrow will bring. And at least there are things you can still do 👌. I also agree with hungry hufflepuff no one else is going to feel sorry for you . I fact I agree with all of the full post ! Please take good care of yourself hope you’re feeling better soon 🌹🌹

[Izb1]

Hi cales, think we all go through this at times, and pulling yourself together is hard, but have your pamper days where you can laze around treat yourself to a good movie, meal, hairdo, whatever appeals to you, or have a friend round for a meal, so that the next day you can pull your socks up and get on with it. I find some kind of exercise helps with this and I dont mind getting up early to do this before the heat of the day starts. Adapting is the hardest, knowing you cant do the things that you used to. Hope you feel better soon x

[Aingeful]

I know this feeling well! It drives me mad when friends etc don't understand and suggest I try exercise or deep breathing etc etc to feel better. I start to feel that having IPF is all my own fault and I'm not trying hard enough! I have a wallow on a regular basis ! 😋

[stamford1234]

Feeling just the same, you are not alone. The pollen count is up. The heat makes me tired and there is so much to do. I have taken to pottering about in the morning and having a nap in the afternoon ... going to bed later. Seems to work. Put some nice music on, have some me time

[cales]

I sympathise with you all and as much as I wish none of us had this awful disease it does help knowing that I’m not alone in feeling the way I do , aingeful don’t beat yourself up remember none of us asked for what we have , and think of all the lucky ones who don’t have it , it’s nobodies fault I think it’s called life love , frustrating and upsetting as it is we have to look st the positives as hard as they are to find sometimes but they are there , onward and upward 😊❤️

[audnits]

I know how you feel. People mean well when they say - be more positive and celebrate the things you can do. But it is so hard accepting that. I miss my independence. I have two very supportive daughters but they have their own lives and I have having to ask them for help! Trying to be more positive and thinking of a good mantra to say to myself every morning!! Any suggestions would be most welcome.