Afternoon all
I don’t visit the forum every day. I find it too difficult reading the stories. I tend to drop in once every 2/3 days normally
Each time I visit and have a scroll through, I see loads of new names!
I’m glad that the forum is being used regularly, and that word is getting out about the good work that the BLF are doing.
However, seeing the membership rise the way it is, makes me wonder if it is also a reflection of a rise in sufferers from COPD and other lung conditions 🙁🙁
Hello Brian, hope you’re ok. It seems as if more people are being diagnosed or having breathing problems looked into and they are really scared.
Thank goodness for this site and BLF in general. You take care x xxx
Hi Carole, hopefully someone will post some facts and figures for us.
Be a shame if the number of sufferers is growing at the same pace as the membership!
By the way have you organised our summer BBQ meet up yet? That is what you said, isn’t it? 🤔😛🤣 xx
Yes let’s hope someone can come up with some facts and figures.
You name the day Brian, it’s a date, weather permitting of course. 🤣🥰😇 xxxx
So long as it’s not this weekend 😉 Storm Hannah is banging on our doors! What a shame after such a lovely Easter! Xx
Ok not this weekend, so we will wait and see 😉
Hope Hannah passes you by. Xxx 😘
Be just my luck for a girl to keep walking lol 😂😂 xx
That’s just what Pete said too!🤣😂😆🙄
🤣🤣 Two great minds.....🤣🤣 xx
Mmmm now let me think about that. Lol 🤔😬
Ouch 🤣🤣 xx
Hope you’ve not suffered during storm Hannah. Thinking of you. Xxx😘👍
Urgh it’s horrible isn’t it? My crazy family have been out shopping but I stayed put. Hope you’re both ok xx
We’ve been quite lucky on the south coast but it’s windy. Our lovely clematis fell down but we’ve managed to fix it back up thank goodness. Take care xxxx
Where on the coast are you Carole? Xx
Between Worthing and Littlehampton. Xxxx
Hi Brian, dont forget that fools rarely differ lol
Haha! 🤣 I walked into that Taffy 🤣
Wow that’s exactly what I was thinking about this morning, how to get all our members in one place for a get together.
Would that be just amazing.
It would be amazing yes. Xxx 😘
Be great wouldn’t it? I’d love the BLF to organise something central that lots of us could attend! Be great to put faces to the names 😎😎
That WOULD be amazing. I would love to meet the actual folk behind the nom de plumes too. Perhaps we should ask? 😉
Someone should definitely ask 🤣🤣
I think these numbers have always been there brian the detection rate for copd is much better these days , i come from a mining community and there was always big numbers what we called black/miners lung back then ,when i was a child everyone smoked back then of course and i suppose records weren't kept so meticulously as now ,lets hope BLF gets the recognition it deserves and knowledge is power they say ,hope your ok m8
Thanks Dave, and you 👍
When I first joined this forum (under a different name) I don’t remember seeing so many new names each time I logged on. I may be wrong though.
Maybe also like someone said in another post, more and more often doctors are too busy (or too uninterested?) to talk to a person about their condition so people come here, by chance or deliberately, to seek answers, support and advice. It could be that more people are getting sick, or more people are being diagnosed, or in the past when one would have gone to the doctor for advice now we have to try to find out online. It would be interesting to know.
Yep I’d love to know. I’m still hoping it’s just a rise in awareness and information sharing than in new cases 😊
People are also encouraged more so these days to be proactive in their care & looking after themselves so that will partly explain increased memberships of all chronic disease related forums.
That’s very true Powdrpuff.
I don't even recall how I found this site. I just stumbled upon it, I imagine. So that shows it also draws members from the USA. For me, this site just gives me the opportunity to express openly how I am feeling and dealing with my COPD. People who are close to me don't want to hear it. That may be the same with others, too. Lately, I've been posting about my battle with sciatica, which has knocked COPD off its perch as my most frustrating malady. (is malady even a word?)
If ‘malady’ isn’t a word, it should be! 😛 Hope you get help with your sciatica, I had that years ago, very painful!
It is an interesting thought and one I have pondered on. But perhaps as a general rule we are becoming more internet savvy and more generally curious. Its thanks to help groups that these forums become useful tools. Its lonely and frightening being a "diagnosed" with little help or explanations coming your way. Many Doctors are too busy to deal with the questions of what, how and why. I sight the policy of my own surgery. Only one condition per consultation. Well many conditions overlap, so you are left with lots of unanswered questions in your allotted 10 minutes or so. So you go away, full on unanswered questions, and worries; but now you have a new best friend to turn to... The internet, or sadly Dr Google ( that's if you want to frighten yourself to death) and cause and effect of which is these groups take off. You find you then are not alone, infact you are one of many. That in itself is comforting and bingo a whole new community of support has formed in the void that once was.
Very well said! Except we don’t get ten minutes at my doctors, more like 3, after waiting for 30 minutes or more! But you are quite right, one illness at a time which is pretty useless for us!
Confused with numbers
Continuing member
NEW MEMBER WITH IPF IN NEW ZEALAND
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