Dyspnea , Dry itreatating cough hoarse voice chest discomfort help !!!predistone

[Rileyocool]

SoI have Dyspnea , a Dry irreatating cough and chest discomfort ... like my chest is & throat has been screaming !!! If had for 5 months now after mild pneumonia .....been to specialist some mild broncatitatis & band fibrosis from previous scaring but nothing Doctors wanted to treat or follow up

On yet I still continue with these Deliberating symptoms every day !!and no one can give me answer The only relief I’ve had was a 2 week course of predistone just wondering if anyone else has had similar symptoms and can shred some light because I’m out of answers ....

[Caspiana]

Hello Riley,

Sorry to hear about your predicament. Coughing constantly surely interrupts your sleep. And without quality sleep your health will suffer. Besides having had some Predisone, are you on any other medication? Any inhalers or antibiotics? Your doctor, I'm sorry to say does not sound helpful at all. Would it be possible to get a second opinion?

Best wishes,

Cas xx 🌿🌼🌿

[Rileyocool in reply to Caspiana]

Been on inhalers n multiple antibiotics & multiple blood test but no answer .... no cure starting to get me down

[Caspiana in reply to Rileyocool]

Is your doctor a lung specialist or a GP?

[Rileyocool in reply to Caspiana]

Lung I’ve seen Pulmonologist ... , I really want to insist on a camera .....

[Caspiana in reply to Rileyocool]

I think you need to insist on what you think is best. You have to be your own advocate. 👍

[Rileyocool in reply to Caspiana]

Yes I think I will

[Patsy164]

Hi Rileyocool did the doctor give you any antibiotics to go with the prednisone?

[Rileyocool in reply to Patsy164]

Been on Antibiotics in past multiple courses current x ray showed no sign of infection ... so prescribed pediscone and nasal spray ....

[Rileyocool in reply to Rileyocool]

So yes but at Different times .... last x Ray I gad showed all clear ...

[Patsy164]

Sorry I hadn’t finished my post. When I had pneumonia I had an awful throat lost my voice even had the camera put down my throat which I was glad of because I thought there was something wrong but all they found was inflammation after that they gave me a sputum test and X-ray which confirmed I had pneumonia but it come with debilitating tiredness, dyspnea and can take a while to get over. I had a two week course of doxycycline and prednisolone. As I have pseudomonas with bronchiectasis they now give me ciprofloxacin antibiotics and steroids for 2 weeks but the trick is keeping the mucus out of the lungs and keeping away from anyone who is ill. I had just managed to be bug free for 6 months but unfortunately got a chill and have been ill again.It is miserable feeling ill and you feel alone but you will get better but it can be slow for some and quicker for others.

[Rileyocool in reply to Patsy164]

How long did it last for you after your first Phneminia ? I want a camera but they won’t do it mine has been going for 5 months now..... we’re you put on a Different antibiotic ??

[Patsy164 in reply to Rileyocool]

I was felt ill for months could have been 9 but I was undiagnosed with bronchiectasis so constantly had infections still. I got pneumonia again mildly but doctors thought I had a virus said don’t take rescue pack then lost voice. All this because I wasn’t taking antibiotics. Finally after all that changed from amoxicillin to doxycycline now ciprofoxacin.

[Rileyocool in reply to Patsy164]

What Antibiotic did you find work f best so your saying you were felt bad for 9 months ??

[Patsy164 in reply to Rileyocool]

i think because of the bronchiectasis it took longer to get over. I was immune to amoxicillin so I have ended up with ciprofloxacin

[Rileyocool in reply to Patsy164]

Did you have a lot of mucus ? Or just felt uncomfortable ?

[Patsy164 in reply to Rileyocool]

I had lots of mucus and uncomfortable

[Rileyocool in reply to Patsy164]

I have a bad throat aswell and my voice is very hoarsish ... n I have this wired feeling around my chest ...

[Patsy164 in reply to Rileyocool]

I too had ct scan multiple blood tests. Second thorax ct scan which is dye injected into you then ct scan showed bronchiectasis. It is difficult to diagnose I’ve been told. Took me 6 years to get my diagnosis but our health system is critical with not enough funds. I found I had to tell them how bad it’s affecting my life to get something done.

[Rileyocool in reply to Patsy164]

After you had the Bronchatitis was that when they put you on the ciprfloraxin ??

[Patsy164 in reply to Rileyocool]

No they changed it to doxycycline but it didn’t get a hold of the infection so then changed it to ciprofloxacin.

[Rileyocool in reply to Patsy164]

I just hope that there is improvement in the future because this is s terrible way to feel ...

[Patsy164 in reply to Rileyocool]

I know it is horrible and nobody really understands unless they have walked in your shoes many of us on this site have so you are not alone. I forgot to mention that after my bout of pneumonia and loss of voice I was put on gastric reflux tablets maybe speak to the doctor about that as Gingerapple said.

[Rileyocool in reply to Patsy164]

Did you ever start to feel better ?

[Patsy164 in reply to Rileyocool]

Yes I did and I was lucky enough to have periods of time when I’m well and can go for walks and be as normal as I can be.

[Rileyocool in reply to Patsy164]

How long was your voice Horsish for ??

[Patsy164 in reply to Rileyocool]

8 weeks x

[Whitechinchilla in reply to Patsy164]

Well said Patsy164. My thoughts exactly.

[Darceydoo]

Hi I take it you had a CT scan to diagnose you. I know what it’s like to cough I have been for 3+ yrs. I’ve chronic bronchitis excessive mucus so you’re not alone.

[Rileyocool in reply to Darceydoo]

Yes I had ct , x Ray everything but have not been diagnosed with anything although it feels like I have a chronic Bronchatis ... but don’t bring up a lot of phlegm ...

[Gingerapple]

Hi there🌻

I have that very often and was often on cortisone and antibiotics until I realised it was my acid reflux. Silent reflux causes wet and dry coughs, hoarseness and dry tickling. Please check with your GP and test for acid reflux. That might be a thing. Acid reflux causes many nasty things and mostly goes untreated!! Have a good day !👍☕

[Rileyocool in reply to Gingerapple]

What do you take for it ,??

[Gingerapple in reply to Rileyocool]

Lansoprazole 30mg 2x

I never lie down after eating, 2 hour wait, raised my bed at the headboard, and careful what I eat. Gaviscon too.

[Gingerapple]

Respiratory infections can definitively be caused by silent reflux, 100% ! Good luck!

[Whitechinchilla]

I think Gingerapple just said it all Rileycool.

I have silent reflux and have always maintained a connection between that and lung conditions.

For me determining my triggers has been very useful though it takes a while to eliminate a food and then reintroduce it , but it is worth it.

I am a vegan so for me giving up onion, garlic and tomatoes was a nightmare, but it helped and 6 months later I have been able to reintroduce them gradually in very small portions. Also any dairy produce is a trigger for some folk.

A lot of folk on this site use Slippery Elm with or without the PPIs.

Hope you get to the root of the problem.