Newly diagnosed

[Lyla2018]

Hi have been diagnosed about six weeks with Bronchietasis,after coughing up blood for a couple of days,was really scary ,was admited to hospital for a week had CT and broncoscopy,feeling tired and i dont know what to expect, my specialist gave me another course of penicilin last week,coughed a tiny bit of blood in my phlegm this morning,how much rest are you suppose to have xx

[RibvanRey]

Hello Lyla and welcome to the BLF. As someone who has had Bronchietisis for years I have an idea of your surprise. Hopefully your Doctor will gradually get your condition under control. A good routine of exercise and a healthy diet will go a long way in helping you to live a good life.

Regards, Rib

[Lyla2018 in reply to RibvanRey]

Thank you for your reply

[cat50 in reply to Lyla2018]

The one thing you need to do is rest when you are unwell .Make sure you continue with your physio routine and removing all the mucus .Itt is tiring when you have a chest infection .Do the exercise when you feel well .It can feel like one step forward and three steps back sometimes but looking after yourself is really important .

[Lyla2018 in reply to cat50]

I hope you dont mind me asking do you cough blood up,i lost a lot at first before i was diagnoised ,im frightened incase it happens again x

[cat50 in reply to Lyla2018]

Some people do cough up blood but I have been lucky that I haven’t coughed any up for a long time until this week .For me it is a sign of infection .Not the only sign may I add as I get many infections.If you are worried and it is a lot of blood go and see your Gp.It takes time and effort to manage this disease .Have you got a good consultant who is Bronchiectasis expert?That is important .If you want to private message me with questions feel free to do it .I have had it a long time.

[watergazer]

Welcome. I feel we all have varying degrees of symptoms depending on how severe our bronchiestasis is. Take care x