All ready to Go

[Hacienda]

Have had my Confirmation Phone Call from Transplant Team, I'm still on the List.😁😁🌷🌷🌷xxxx

[Damon1864 Volunteer]

That's brilliant news hope it will be soon and you won't have along wait. Love Bernadette 😊 xx

[Hacienda in reply to Damon1864]

Thank You Bernadette, XXX

[CELAT06]

That’s fantastic, let’s hope the wait is not too long and you get the call soon. Best wishes. XXX

[Hacienda in reply to CELAT06]

Thank You Hun, I'll keep exercising, dieting ( a Little) and generally Loving Life. XXXX

[sassy59]

Yeah! Great news Carolina. Xxx 😘💖

[Hacienda in reply to sassy59]

Thank you Carole & Pete. Love n Hugs to you Both. XXXX

[skischool]

i am dead chuffed that you have managed to stay on the list Carino but a big part of me hopes that your exercise regime,your new valves and possibly other interventions will give you a good enough quality of life that enables you to enjoy all the things you enjoy doing until such time as you are too old and daft and batty(like now?) and that you never need those exchange parts.

besitos Ski's and Scruffy xx

[Hacienda in reply to skischool]

I hear you Carino, It's good to know my pushing to Exercise and keeping positive has paid off. But, Yes as I get Older, I have to be realistic...I shall carry on as I am...Arriba- Abajo- centro- El dentro..salud. Love n Hugs . XXXX

[Hacienda in reply to skischool]

Yes, Still Batty, Still love my Lippy, Love Life and My HU Friends . xxxx

[skischool]

yes you are surrounded by love and loved ones and you have every reason to want to live for as long as possible and enjoy life to the full while you can and i can see your reasoning to want to take that leap into the uncertain waters to maintain that,please don't think i am being negative but i always associate transplants with sort of sitting at the last chance saloon when in reality they can be the doorway to a wonderful new world.xxx

[Hacienda in reply to skischool]

Gracias Carino, I will always read your Heartfelt words, you understand so much. ❤💄🌹🌹🌹xxx

[Carnival567]

What good news! I hope you don’t have to wait too long xx

[Hacienda in reply to Carnival567]

Thank You Hun, I hope so Too. XXX

[Hidden]

Great news Carolina 🌸💕🌺

[Hacienda in reply to Hidden]

Thank you Fran, Hope your doing ok re, Eyes & well Being. Love n Hugs. Besos. XXXX

[Katinka46]

Great news. And congratulations on your attitude and determination. Your news is well deserved.

Love and hugs

Kate xxx

[Hacienda in reply to Katinka46]

Thank you Kate, Yes, Determination says it all, Positivity is a Must with our Conditions. XXX

[Caspiana]

Yay!!! 💕👍😊

[Hacienda in reply to Caspiana]

Thank you My Buddy Friend, Love n Hugs XXXX

[HungryHufflepuff]

That's the best news, it's wonderful news 😊 I join with everyone else in hoping that you won't have to wait too long.

[Hacienda in reply to HungryHufflepuff]

Thank you Huff, Much appreciated. XXX

[maggiewhiteley]

glad you got the news you wanted, but glad you have your valves for now to help you breathe easier. Stay well , Maggie x

[Hacienda in reply to maggiewhiteley]

Thank You Maggie, Yes, glad I have my Valves as they do help. XXXX

[Hidden]

Great news. Hope you don’t have to wait long for the next call. 😊

[Hacienda in reply to Hidden]

Thank you, Rayswife, I hope I'm not waiting too much longer, XXXX

[Izb1]

Good news Hacienda, hope this comes soon. Roll on the day when they can grow a new organ from our own bodies. I read some years ago about a mouse having an ear grown on his back to have transplanted, so who knows . Irene x

[Hacienda in reply to Izb1]

Yes Hun Thank You, I Totally Agree, Keep saying this, we do all think alike on here don't we. XXXXX

[Judith56]

That’s FANTASTIC! I will be praying you get the call very soon.

[Hacienda in reply to Judith56]

Thank You Judith. xxxx

[Kristicats]

Hi Hacienda Great.hope you are keeping fit in readiness for your future op. How much difference do you think the valves have made to your breathing up to now? Cx

[Hacienda in reply to Kristicats]

Hi Hun, A Big Difference, I still need Oxygen .but less, I can do more than before, will never run a Marathon Ha, Would love too. I do not gasp for Breath as Before. I know I need a Transplant, But if the Valves continue to work well, then I'm Happy to carry on. They have a 2 year span before being replaced. Hope Your OK Today. Have a Great Weekend. Love n Hugs . XXXXX

[Kristicats in reply to Hacienda]

That’s great. Didn’t realise the valves need replacing though . Take care C x

[skischool in reply to Kristicats]

Quick fact,up to 70% of people receiving EB valves are documented as benefiting.and the overall improvement to FVC1 in the treated lung has been documented up to as much as 19%.these have been the best case scenarios in recent trials.

Boring Ski's with a vested interest lol.x

[Hacienda in reply to skischool]

Gracias Carino, Informacion es Muy Importante. Well we learn something every day, This Info is very important to Know. Abrazos y Besitos a Ti, y Scruffita. xxxxx

[Hacienda in reply to skischool]

You, Never Boring. mwarr XXX

[Alfiebax2]

Let's hope it's soon .fingers crossed for you Keep smiling .

Love Babs ♥️♥️♥️♥️

[Hacienda in reply to Alfiebax2]

Hi Babs, Not heard from you much Lately, When do you have your Reduction ? as you may know Skis has just been for a Pre Procedure, Should have his valves in November. You can PM me if you Wish. Love n Hugs un. xxxxx

[Shirleyj]

That's great new x x

[Hacienda in reply to Shirleyj]

Thank you Shirley. Hope your well. XXXX

[lKeith]

Hacienda

Hi, good for you, go for it. hope it is soon.

IKeith

[Hacienda in reply to lKeith]

Hi Keith, Thank You, I hope it's soon too, It's having to be 100% Match, Hence why the Delays. Take Care xxxx

[Jackieshep57]

Great news! Hope you don't have a long wait. Xx

[Hacienda in reply to Jackieshep57]

Thank you Jackie, Soon as they have a Match, they will call me. Take Care. XXXX

[cofdrop-UK]

Great news Hacienda. You have a wonderful attitude which will stand you in good stead.

Love cx

[Hacienda in reply to cofdrop-UK]

Thank you cd, Much appreciate your reply. XXX

[peege]

That's really great news! Now take great care of your precious self

🌹🌹🌹🌹

[Hacienda in reply to peege]

Thank you Peege, I will do, with Great care. XXXX

[Ern007]

What a great attitude, I hope you never need the spares, but if so I hope for you it will be soon..

[Hacienda in reply to Ern007]

Thank You Ern, I will accept anything that's keeps me Going, Chuckle. XXXX

[joyce74]

Pleased for you x

[Hacienda in reply to joyce74]

Thank you Joyce, hope your Ok. Love n Hugs XXXX

[joyce74 in reply to Hacienda]

Glad for the cooler weather thanks x

[DaisyEric]

What wonderful news!! Very best of luck and be good and do what the nurses tell you!!

[Ergendl]

Great news! Good luck for the next stage.

[Busybee57]

Fab news Hacienda xx. I will keep eveything crossed for you xx🐝😀