Is anyone happy with their meds

[janet1944]

Emphysema any new meds that are effective.

[wooo]

Hi janet,

I have been on ultibro for 12 months now and have found it amazing.

I can actually get to the top of the stairs without feeling like I've claimed a mountain.

Good luck stay positive

[janet1944 in reply to wooo]

Thank you so much for your reply, I’m actually going to see a Consultant, first time , I have not been able to get out for years, i asked for roflumilast from my Doctor he would not prescribe them, therefore a visit to a consultant.

I keep trying to find something that may work. I use symbicort / spiriva / salbutamol. Nothing works anymore. I have always used this medication 8years.

Possibly stage 4.

Here’s hoping I will receive a magic cure, well no not cure, just relief ,

I will google Ultibro now and try and make it fit me. Thank you again Wooo

[Jan_m in reply to janet1944]

I too had been on the same meds as you for 9 years, my Symbicort has recently been changed to Fostair Next 200, since the change I have shown an improvement. Jan x

[janet1944 in reply to Jan_m]

Thank you Jan m. I have heard fostair, not next 200. Busy tonight googling all these amazing (sounds like) new to me inhalers. I will have so much to ask the Consultant I hope he gives me enough time. Can’t wait for something new. Best wishes janet.

[Jan_m in reply to janet1944]

Hi Janet, yes they do do just Fostair and Fostair Next, I just find the Fostair Next Easier to use and tastes better! Good luck x

[Kristicats]

I tried to answer but my message went out as a new post?? Emphysema (stage2) sorry

[janet1944 in reply to Kristicats]

Chriskho thanks I will go back onto the site and find your post, kind of you to reply, enjoy your evening best wishes janet.

[chubby2x22]

Morning Janet. I feel so much better and not so much coughing since my consultant prescribed azithromyacin (abs) 3 times week and spiolto respimat inhaler . Maybe worth reading about ...we are all different.jane

[janet1944 in reply to chubby2x22]

Thank you chubby2x22. I have read before someone on the site was taking the same dose Of azithromycin.Not spiolto. Looking up all these new to me inhalers. For Thursday.best wishes janet.

[Roysieboy]

Hello Janet. I have emphysema and have been on a Duaklir inhaler taking 1 puff twice a day. It seems to suit me very well. I still get the odd day when I feel iffy but majority of the time , things r ok. Hope this can b of some help to u. Best wishes.👍🤓

[janet1944 in reply to Roysieboy]

Thank you Roysieboy I’m googling all these new to me inhalers. Have a good day. Janet

[lKeith]

janet1944

Hi, I don't think anyone is happy with their meds as the illness does not go away whatever you take.

There are treatments & trials that you could try to get on, try "Clinical trials" site they often advertise for entrants. You could try getting a lung transplant, lung reduction, lung coils or lung valves & stem cell treatment. Many of which you will only get privately but some of these services are on NHS but either way you will need to be referred by your GP or specialist.

IKeith

[janet1944 in reply to lKeith]

Thank you Ikeith I have taken your advice on board, I’m trying to digest it along with the other very kind people who have replied to my query. Best wishes.janet