Your experiences of self-managing and thoughts on the future of digital health

*this post has been approved by BLF*

Hi members,

I am a Computer Science PhD student studying at Lancaster University. I'm interested in understanding the lived experiences of those with chronic respiratory conditions, how they self manage in the community and their perspectives of using technology to self-manage in the future.

I have been working with the wonderful Breathe Easy groups in the North West of England, observing the different activities that the groups do and speaking to the members. My mum also has COPD so this research is very important to me.

I am wondering if anybody has 5-7 minutes spare to fill in an anonymous survey to help my research, I'd love to hear from you and your experiences. Please follow this link to the survey: bit.ly/CHC-survey

Alternatively you can try and highlight the link and copy and paste it into your address bar in your browser (as shown on the image attached). It should work with and without the at the front of the URL.

Thank you so much for your time, I look forward to hearing the experiences of the community.

[stone-UK]

Hi

Same problem not loading tried three times.

[Hidden in reply to stone-UK]

Hi stone-uk,

I have had some responses via the link so it may be an issue with your individual browser, which if so, my suggestion would be to highlight the link, copy and paste it into your URL address bar and add in front of it. This should direct you to the survey. Please ensure you copy it into your browser address bar and not a search engine bar, such as Google or Bing which sometimes also appears on your browser by the URL address bar, and can be a little bit confusing.

[stone-UK in reply to Hidden]

Hi

The problem appears to be with the Safari browser, tried a different browser and it loaded. Survey completed.

lancasteruni.eu.qualtrics.c...

[Hidden in reply to stone-UK]

Excellent, thank you so much - and also thank you for sharing your solution to the problem!

[stone-UK in reply to Hidden]

Hi

Strangely it works on iPhone not on iPad same browser.

[mskpjb in reply to Hidden]

Done, Sheila x

[mrsmummy]

Post approved by BLF.

Survey completed.

[skischool]

Done on chromebook with no problems what so ever..........ski's

[PMRPete]

No problems.

[2greys]

Loaded in Firefox okay. Completed.

[Offcut]

No problems but I have turned off the BT web protect. All done okay good luck with data!

[clematis5932]

completed on laptop no problems thank you.

[Hidden]

Ok I completed it.

[jockenglish]

Done on laptop, very straightforward, thanks and good luck.

[judg69]

Completed on iPad with no problems, judg69

[greatauntali]

Completed using Edge browser without problems.

[Hidden in reply to greatauntali]

I just wanted to thank you once more for participating, and let you know that part of this work that includes some of the survey responses has been published.

It is available here: research.lancs.ac.uk/portal...

[Badbessie]

Done....hope it helps.

[Hidden in reply to Badbessie]

I just wanted to thank you once more for participating, and let you know that part of this work that includes some of the survey responses has been published.

It is available here: research.lancs.ac.uk/portal...

[Dedalus]

Done - good luck.

[Hidden in reply to Dedalus]

I just wanted to thank you once more for participating, and let you know that part of this work that includes some of the survey responses has been published.

It is available here: research.lancs.ac.uk/portal...

[Roseking2001]

done on laptop.

[Hidden in reply to Roseking2001]

I just wanted to thank you once more for participating, and let you know that part of this work that includes some of the survey responses has been published.

It is available here: research.lancs.ac.uk/portal...

[Festie]

Done on android phone

[Hidden in reply to Festie]

I just wanted to thank you once more for participating, and let you know that part of this work that includes some of the survey responses has been published.

It is available here: research.lancs.ac.uk/portal...

[Hidden]

Thank you so much to everyone who took the time to respond to this survey, and thank you to the BLF forum moderators for letting me reach out to everybody on here. Without your responses, the next stages of our research could not be possible! I look forward to looking through the responses and learning more about how respiratory conditions effects people's lives and their opinions on the future of digital health. The survey will be closing on June 18th so for anybody who would like to respond, please make sure you do so before then.

Please also feel free to PM me if you have any further questions about the project or would like to chat further about the topics mentioned in the survey!