For the past few months.... - Lung Conditions C...

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For the past few months....

Dmactds profile image
24 Replies

....I've had a purplish coloring to my hands from the tips of my fingers to just above my knuckles; sometimes lighter in color, sometimes darker but it's always there.

Since this is a fairly new development, I'm wondering if anyone else has had this sort of thing occur.

=============

...and on the UPSIDE:

telegraph.co.uk/news/pictur...

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Dmactds profile image
Dmactds
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24 Replies
Roessner541 profile image
Roessner541

I have in my left hand and my feet I think it might be circulation but not sure it isn't all the time.

Dmactds profile image
Dmactds in reply toRoessner541

You haven't gotten any feedback from your doc?? My cardiologist has put me on two different meds: Revanex and Imdur to see if they help..., so far no change.

Roessner541 profile image
Roessner541

I haven't really worried about it to much it has been temporary don't really need more pills.

Badbessie profile image
Badbessie

There could be a number of reasons for the discolouration you describe. Best advice would be to discuss it with your GP. It may not be circulation and there are conditions which could account for some of the symptoms. Due to this a trip to the Doctor is in order as no one can diagnose online.

Hi. I go a bit blue when my oxygen levels are low. Best get it checked out.

Ergendl profile image
Ergendl

I get something similar as part of having Raynaud's phenomenon, when the blood vessels shut down in the cold and then the blood starts to return, turning purple as it picks up all the CO2. Then it's called cyanosis. Do get your symptoms checked out by your GP.

gingermusic profile image
gingermusic

Mine normally go like that when my oxygen levels are low, see your doctor

Happyhele profile image
Happyhele

I have this too , i first noticed it on the back of my hand a few years ago and like u said , it never goes away, n can be darker and lighter , I went to my GP and she said it’s probably from long use of steroids.. over time it’s spread very slowly n is now halfway to my elbow... when it was few inches past my wrist my GP done a skin biopsy , but nothing came bk from that , and still she said it’s most likely to be from long term steroid use ... Personally my thoughts are that it could be that , but it’s only her best guess n she’s a skin specialist at the GP surgery too ... But I’m not convinced, n it’s starting on my other hand now... I’ve tried my respiratory nurses and consultant but have had no joy there.

Please can u let me know how u get on, n if u get any diagnosis at all ....Thank u

Helen

Dmactds profile image
Dmactds in reply toHappyhele

Happy,

I went for a search for "long term use of steroids, purple fingers" and got this page back which is concerning another medicine, prednisolone, which I've never taken; but I DID take Symbicort, which is steroid laden for a bit over five years and have been off that and on Stiolto for the past few months so I'm going to mention that to my pulmonologist when next we meet. In the meantime:

patient.info/forums/discuss...

Dmactds profile image
Dmactds in reply toDmactds

Also...., meant to mention, this morning, there doesn't seem to be much discoloration at all and it's chilly and a bit windy here; so....,

Happyhele profile image
Happyhele in reply toDmactds

Yes prednisolone is the steroid ive been on for many years and is the only one I know of being prescribed for respiratory difficulties here in the uk ...

leonie47nz profile image
leonie47nz

I also have very purple feet.i just put it down to circulation

Dmactds profile image
Dmactds in reply toleonie47nz

Are you doing anything to counteract it....; or are you just resigned to it...?

falconcottage1 profile image
falconcottage1

I have had this on and off and on for years. Its cyanosis due to lack of oxygen.

Not very nice to see. I also get times when my face completely goes white, to the point were my work mates asked me if I was ok and did I need to sit down.

My hands are going blue now as I write this. Good old Bronchectasis.

Caspiana profile image
Caspiana

Hello Dmactds .

I have that occasionally but it's from Raynaud's syndrome. Raynaud's can cause fingers to turn blue or even white. My toes did it once too. 😐

health.harvard.edu/diseases...

I hope you are doing okay and you get to the root of the matter soon.

Take care and warm wishes.

Cas xx 🐇

HungryHufflepuff profile image
HungryHufflepuff in reply toCaspiana

Hi Cas I tried to read the article at the link you posted but it only shows the first few lines then says you have to be signed in to read this article. My mum has recently been told she has Raynaud's phenomenon, she's been given some medications to open her blood vessels (I think? Does that sound right?) Her fingers are often purple or black and sometimes very swollen and sore. I just wanted to learn more about Raynaud's phenomenon but am not keen on Google because that can be terrifying, everything is doom and gloom! She mustn't have grapefruit juice. But otherwise, is there anything that would be beneficial to avoid or include in her diet that can help? Or anything else that could help? She wears gloves even indoors and keeps warm.

Dmactds profile image
Dmactds in reply toHungryHufflepuff

I can only suggest you get past your fear of Google; it's an information tool like any other and you just need to wade through the obvious trash and get to the good stuff like on the Mayo Clinic site or some other well known medical information site.

Google is like the Encyclopedia Britannica; it's got loads of beautiful, marvelous information and pics..., it also has a lot of info on murderers, wars, diabolical maniacs and so on and so forth. Have fun with it.

HungryHufflepuff profile image
HungryHufflepuff in reply toDmactds

OK thanks. I didn't know any good site. I'll look at Mayo clinic that you've recommended. 👍

HungryHufflepuff profile image
HungryHufflepuff in reply toDmactds

Sorry I meant to ask, were you given an explanation or diagnosis for your hands? I hope you're doing as well as can be.

Caspiana profile image
Caspiana in reply toHungryHufflepuff

Hello HungryHufflepuff .

I'm sorry to hear about your mum.*Hug* 🌸

Is your mum's Raynaud's primary or secondary? Mine is secondary caused by Sjögren’s syndrome. Currently my Sjögren’s is well managed and that keeps the Raynaud's at bay. I don't need any specific medication for Raynaud's at the moment. So, I cannot compare your mum's treatment with my own.

I do know that my Raynaud's occurs most in winter. The cold and stress can make it far worse. The only thing I've been able to do is keep myself as warm as possible and avoid stress. I also enjoy spicy soups in winter and ginger based food. That keeps my body warm and seems to help. I also constantly keep a warming pad nearby if I start to feel my fingers get numb. 😀 Take good care and best wishes to you both. xx 🐞🌻🌸

HungryHufflepuff profile image
HungryHufflepuff in reply toCaspiana

Thanks so much for your reply and kindness. Until my mum was told she has Raynaud's I had never heard of it, to my shame. So I don't know all the vocabulary of it and have no idea if it's primary or secondary. Until just now I didn't know there are two kinds. I Will ask her. My mum likes spicy soup and ginger so she has quite a bit of that kind of thing already. I guess food that makes you feel warm is good. Thanks for all your ideas, I really appreciate it.

Caspiana profile image
Caspiana in reply toHungryHufflepuff

You're welcome, but please, there is no need for shame. I knew nothing at all of it until it knocked at my door. Very normal I think. 😀

sylvnan profile image
sylvnan

I too have just one blue foot. GP they just say keep it elevated, it is the left foot which is where i had a recent hip replacement. The foot is also always freezing cold, (even with bed socks on!)

Dmactds profile image
Dmactds in reply tosylvnan

Since your hip operation are you up and around..., that is to say, are you exercising your leg ??

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