Power Cuts: Awoke gasping for breath... - Lung Conditions C...

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Power Cuts

mich11020 profile image
21 Replies

Awoke gasping for breath 5am - no bipap power or oxy - managed drag myself downstairs with torch switch oxy from concentrator to large cylinder. Lesson learnt for the winter months - keep a portable cylinder in bedroom. Not much I can do bout bipap thou when leccy goes off. Stay warm and well people.

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mich11020 profile image
mich11020
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21 Replies
sassy59 profile image
sassy59

Scary stuff and glad you’re ok. Take care and stay safe. Xxxx

mich11020 profile image
mich11020 in reply tosassy59

Thank u sassy - and you. x

O2Trees profile image
O2Trees

Whoa Mitch, terrifying. Hope you're ok now, good oxygen cylinder will be near you at night now.

mich11020 profile image
mich11020 in reply toO2Trees

Thanks 02 trees - cd have been worse & off all night - just glad I had a torch or wd hav panicked even more - just a one off I hope.

Ruach profile image
Ruach

Your utility company will have a listing for vunerable customers..........I am listed with mine.

They will make provision for anyone with medical needs, usually with a portable solution, generator, powerpack etc for equipment if the power goes off..

Get yourself listed with them and at least you will have some peace of mind.

mich11020 profile image
mich11020 in reply toRuach

Thank you ruach, didn't know that - will look into it. Thankfully this was the 1st time I've had a power cut while asleep.

mrsmummy profile image
mrsmummy

I'm pleased you are okay. To Be Winter Ready, you should:

•Know your free emergency numbers - in a power cut dial 105 or, for a gas emergency, dial 0800 111999.

healthunlocked.com/blf/post...

dall05 profile image
dall05

Hi Mich,

Now my oxygen needs are much higher I have the large B10 cylinders at the ready around the house. Bedroom and toilets are sure to be where I am when that inevitable power cut comes. 😁

mich11020 profile image
mich11020 in reply todall05

Hi dall - I just have one b10 in living room - don't really want them all around house but I shall be keeping a portable upstairs from now on.

dall05 profile image
dall05 in reply tomich11020

I use B10s now because I'm on 15litres when on the move.

400 portables were fine until around 12 months ago 😊.

I use the cylinders also for night trips to the loo because my concentrators are downstairs and on a lower setting for sleeping to moving.

My house is full of concentrators and cylinders. so I should be well sorted for those power cuts 😉

mich11020 profile image
mich11020 in reply todall05

Sorry to hear you need a LOT of oxy & here am I moaning some days bout luggin my portable liquid around. Wish oxy could somehow be compressed into much smaller bottles - that wd b gd.

dall05 profile image
dall05 in reply tomich11020

yeh' when I leave the house these days its like a military operation.I often go out with my wife carrying 3 liquid oxygen flasks and 3 compressed cylinders.

I've even taken a B10 on a trolley sometimes

Mind you without portable oxygen where would we be 😉

.

Caspiana profile image
Caspiana

Oh wow. That's awful mich11020 . Plus it must have been freezing. 😖 Take care of yourself.

Cas xx 🌹

mich11020 profile image
mich11020 in reply toCaspiana

Thanx cas - and you - yes it was freezn - went back to bed wearin my cardi! Lol. x

hypercat54 profile image
hypercat54

That must have been really scary! I am glad you were quick thinking enough to get your portable cylinder. Stay safe and well.

maycranefly profile image
maycranefly

Wow .thank God you are o.k lesson learned to keep a portable in bedroom.get yourelf registered. Stay safe.

Oh bless you ,I would have had a total panick attack!!!! I have bipap as well and I suffer from claustrophobia so the thought of the electric going and nothing coming threw the mask !!!! Scarry , you are a ruffy tuffy I hope you never have to go threw it again hun xxxx

mich11020 profile image
mich11020 in reply to

Thanx caz - just as well I had the torch handy - we usually only have the occasional power cut in the day or early eve - so this was a bit scary but I can sleep soundly knowing my portable oxy is within reach now. xx

Ruach profile image
Ruach

This link should give you an insight into what help is available and how to get it.

ukrn.org.uk/wp-content/uplo...

SquirrelsHolt profile image
SquirrelsHolt

So glad it all ended up ok for you and well done for staying in a "non-panic" mode to go downstairs to your big oxygen cylinder. (I know I'd have gone straight into a panic attack!)However,have taken your comments on board and have a spare,little cylinder under my bed for such emergencies!! Hope all went back to normal fairly soon for you and like you've said,let's all stay in the warm.

mich11020 profile image
mich11020

Thanx squirrels - times like these I wish I lived in a bungalow - glad my post has also helped - in keeping a spare cylinder close by but hope we don't need it. x

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