Hi iv been diagnosed with mixe...

[Dion3844o1]

Hi iv been diagnosed with mixed connective tissue disease/lung disease I don't no what to to what to expect were to turn I feel like my life is downhill from now on ,the Dr at the hospital just says it's early days it's been around 2 yr now but this latest bout of been in hospital for 6 days another chest infection brought things home to me it's the part 'lung disease' that scares me I'm trying to keep it together but I also have bipolar and steriods and bipolar sometimes don't mix I am so scared 😥

[Hidden]

Hi sorry to read about your issues FIRST thing i would ask doctors are my bipoler drugs contributing to my convective tissue diseases.

And or do you have lupus.

Have know talked to few with bipoler and your first known with connective tissue disease.

I have immunity issues to and know with lung disease the not nice

[Dion3844o1 in reply to Hidden]

Hi thank you for replying as far as I'm aware the steriods can cause moods swings but hopefully if they start kicking in more iv had bipolar for a number of years so hopefully I'll be careful for it not to aggravate my moods and Dr said I haven't got lupus all I no I have lung disease and ra which I guess is the tissue diease I think I could cope with anything thrown at me apart from the internal organs I feel like I'm not been told anything I'm so scared all these years living with depression and not wanting to be here at times and now I don't no whats going on I'm praying im staying around 😑

[Hidden in reply to Dion3844o1]

Am sure you be round for a long time .. With any inflammatory diease geting ontop of symptoms issues is paramount guess thats why on steriods.

[Dion3844o1 in reply to Hidden]

Thank you.

[Hidden]

I feel for you. Sometimes we are so alone. Good luck to you Dion

[AngieB72]

I have MCTD and pulmonary fibrosis caused by it. I was diagnosed about 8 years ago. I'm not going to lie it hasn't been easy. I have had to give up work and now use ambulatory oxygen, but I am still here and stay positive. There aren't many of us on this site but we are here if you need questions answered. -xx-

[Dion3844o1 in reply to AngieB72]

Thank you I'm so glad I found this site i don't no what I would have done ,today's not such a bad day tomorrow might be different but for now I'll live for the moment there's always someone worse off than me thank you again for replying x😊

[AngieB72 in reply to Dion3844o1]

No problem - I am only 45 and look healthy so it can be very frustrating.

[Hidden in reply to AngieB72]

Good on ya