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damn scared

homegirl59 profile image
14 Replies

I was diagnosed with emphysema alittle over a year ago almost two and have diabetes live in America no free health care here have type2 diabetes am very afraid I will not live long with this disease have cerebral palsy mild

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homegirl59 profile image
homegirl59
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14 Replies
Caspiana profile image
Caspiana

Hello homegirl59 .

I am sorry about your condition. I have friends in America and I have heard how difficult it is for people who require specialized care. I don't have Emphysema but there are other members here who do. I am sure someone will come along shortly. Wishing you the best.

Cas xx 🌿

Badbessie profile image
Badbessie

Hi best advice is if you smoke, Stop. If you are under or over weight take action to rectify until your BMI is within normal limits. Lastly the more exercise you can do the better. There are many exercises on YouTube for people with Emphysema. There is an awful lot you can do which is free. Lastly eat the best diet you can.

Shaurene profile image
Shaurene

Hi Homegirl

I also have Emphysema. I get bronchitis quite often. I am New zealand but over the last 8 yrs live in Thailand. Been in the hospital over the last 4 yrs around 4 times a yr. i ended up with Type 2. I found out the cause. They just pumped me full of Steroids with mainly Prendison i looked it up and the worst thing to take.can cause many dangers to you. I stopped taking these and my diabetes has more or less gone. I do not take any sugar or sweet stuff. If you are on this Prensisone or Prendislone get off it now slowly. Look it up on Google some top hospitals in USA make the reading frightening.

Drink plenty of water and home made veg/fruit juices organic is best. I used to have a reading close to 20. Now i average 6.5 to 9.

Hope this helps. .

homegirl59 profile image
homegirl59 in reply to Shaurene

when does emphysema start taking your breathe away?

Shaurene profile image
Shaurene in reply to homegirl59

As you know it can not be cured. It can be stabelisd. Stay out of waste areas puting out toxic fumes/waste. Wear a mouth cover in busy areas. No smoking. Eat good eggs, fish, chicken for good. Make organic veg and fruit juices. If you do not suffer now with shortage of breath younare only a very mild case. I would not stress myself out over it.

Do good walks in the day. Streatch your lungs. Take deep breathing periods. Take as much air in as you can and keep it there 10 secs. Exhail your lungs out as much as you can. If you do excesive work you should be getting a little short of breath, if not you are a very mild case. Just have a vent puffer handy when you get out of breath. You do not need to keep running to the doctors, it cost you a lot of money and they really cannot help you very much. I find a good puffer is VENTOLIN. You are in USA go onto a site PURATINS PRIDE. Get some vitamins, D3. &K, CO Q10, vit C &E these vits are very good for you and they are very cheap.

Sorry, how old are you?

Remember, do not worry and stress out, and do not be frightened. Just carry on as you do.

homegirl59 profile image
homegirl59 in reply to Shaurene

I AM 58 AND IM SCARED I DONT KNOW IF I WILL MAKE IT FOR LONG TERM HAUL I M TRYING TO FOR MY DAUGHTER AND GRANDBABY GIRL CAN SOMEONE SUGGEST FOODS I CAN EAT THAT WILL PUT WEIGHT BACK ON ME BEING DIABETIC NEED SUGGESTIONS'

Shaurene profile image
Shaurene in reply to homegirl59

Hey Homegirl. I have suggested types of food. Keep off anything with sugar. Have you been given diabetic tablets. METFORMIN are good.

Check foods and diabetis out on Google. Lot of sites.

Your weight will come back once you stop this shtless thing. Worry, stress is one of the biggest causs for weight loss.

Do it for your family if not for yourself.

Ken

xx

paintbusters profile image
paintbusters in reply to homegirl59

Ensure plus. Ten can make a pound of human flesh. You can't eat e ough to put on. But the ensures are 350 calories n a short shot. Get cases. Drink them . Big time. I was down to 103. Now I'm 114 . I want to go back to 120. Even at 114, it no longer hurts my butt to sit.

paintbusters profile image
paintbusters in reply to Shaurene

Get anebulizer, twenty bucks on eBay, for Albuterol. A pulmanologist I respect told me, you can live as long g as you.care o. You need support, so excited help at home. Get into pulmanary rehab. The others there will help you. You can live as long as you need or want t to. Although god and desti y and traffic can cut that short. But the emphazema can be worked with.

paintbusters profile image
paintbusters in reply to Shaurene

There is nothing wrong with Prednisone. Don't practice medison if you haven't got a LOT of facts straight.

Shaurene profile image
Shaurene in reply to paintbusters

Hi Painbusters.

I do not practice meds. Prenison and Prendilone are very much Steroids. I checked this up on Google. A few top hospitals in USA gave a lot of information on these pills and the Steroids. Quite concerning. Why don't you look it up. You might lean something.

I am also going by experience. I spent quite some time in hospitals in Thailand where i now live with acute broncitis and they pumped me with Prensislone/Prendisone and i suffered. Never ever had problems with diebitis, swelling feet etc. Quite a lot of doctors say the benefits outway the dangers.

But i suffered and since i stopped being given Prendisone after close to 1 yrs my swelling has stopped and my sugar readings have stabelised at 5.5-7 readings. That is good enough for me. I did suggest to Mygirl to check it out on Google now i suggest you do the same.

No need to condem people giving their opinions from experience.

Do you know the dangers you can go through if you just stop taking these pills after long term.

darkeyes9090 profile image
darkeyes9090 in reply to paintbusters

many folks have severe side effects, everyone use google please

So sorry to hear of your difficulties. The only thing I can suggest would be things you probably already know about:-

apply for health care insurance hhs.gov/programs/health-ins...

contact social services hhs.gov/programs/social-ser...

lung USA advise on what help is available locally to you lung.org/

diabetes USA diabetes.org/diabetes-basic...

Cerebal palsy help usa ucp.org/findaffiliate/

this may be a helpful resource for you also: easterseals.com/

Living with lung disease and diabetes its important to have awareness on your diet and take the appropriate exercise in addition to taking medication as prescribed.

Access all the help you can I hope some of the links above will help you do that.

Best wishes

Alauralane profile image
Alauralane

Hello there Homegirl, sorry to hear you are been diagnosed with emphysema and feel afraid for your outlook also you have medical insurance problems, you do not say what stage you are, but whatever the stage there is so much you can do to look after yourself and slow it's progression, I have mild emphysema in the top of my lungs but to date it is my asthma that causes me my breathing difficulties, I have been told independently by different sources that if I look after myself, it should not be a problem, you can slow the progression to the same decline yearly in lung function as natural aging has on your lungs, the damage has been in my lungs since I quit smoking over 20 years ago, most people die with COPD then of it, many people here have been living with it for years two to three decades, it is not the death sentence we all fear it to be when you are first diagnosed. These are all free things you can do for yourself Stop smoking is number one, avoid colds, pollution, even cleaning products, exercise daily, cut sugar out of your diet to help control your diabetes, and like me I was under weight and started eating an extra calorie dense meal a day usually including pea and lentil pasta which is high in protein but not heavy on carbs good for diabetes, nuts and seeds are great too, with extra bananas through the day. All the best, stay off scary Google for emphysema details, phone the BLF lung nurses here for advice and keep coming to this site where real people can share their actual experiences.

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