I'm new here.

[6Bethany]

Hello, I am Carole. I am new to the site. I was diagnosed with COPD in 2016. I enjoy reading all the posts on this site.

[mrsmummy]

Hello and welcome to the forum.

[6Bethany in reply to mrsmummy]

Thank you very much

[sassy59]

Hello Carole and welcome to you. I am Carole too and care fur my husband Pete who has had sarcoidosis for 26 years and COPD for around 7.

Feel free to chat and ask any questions if you want to. Xxxx

[6Bethany in reply to sassy59]

Thank you vey much Carole

[Fionafish]

Hi Carole, was diagnosed with COPD about five or six years ago and like you I do enjoy reading the posts - have learnt more here than from more than a few trips to the doctors

[6Bethany in reply to Fionafish]

I look forward to gaining so much more knowledge on COPD

[Damon1864 Volunteer]

Hello and welcome, nice to meet you. Hope you will continue posting. Have a lovely weekend take care 😊 xx Bernadette

[6Bethany in reply to Damon1864]

Hi Bernadette, thank you for your friendly welcome.

[Katinka46]

Welcome to this brilliant forum. People here are friendly, informative and very supportive. You have come the right place.

K

[6Bethany in reply to Katinka46]

Thank you so much, i am sure that I will learn a lot from becoming a member of the group.

[Caspiana]

Hello Carole. Welcome. It's so lovely to have you. 🍀🌸🍀

[6Bethany in reply to Caspiana]

Thank you so much.

[Ergendl]

Hi 6Bethany Carol, and welcome to this site. I was diagnosed with COPD in 2015, and found this site a godsend. People have taught me so much about my condition and how to look after myself to get the best from what I've got - they've shared their experiences and what they do, and they're very helpful if you ask a question about living with lung disease.

[6Bethany in reply to Ergendl]

I am sure that I will find the site very useful, as the information is straight from the horses mouth!

[katieoxo60]

Welcome Carole, I too have COPD hope to chat to you more in the future. I was diagnosed in2009.

[6Bethany in reply to katieoxo60]

Thank you, there are so many of us suffering with the same thing, so we can empathise with each other.

[lKeith]

Hi Carol, welcome. I too have COPD like most on this site which has unfortunately developed into severe emphysema but through people on this forum have found possible treatment.

It's been very worthwhile.

Keith

[6Bethany in reply to lKeith]

Hello Keith sorry to hear that you have now got severe emphysema,

over what period of time did it take to get to that stage?

Carole

[lKeith in reply to 6Bethany]

Hi,

It took me approx 18months to get to severe, but a forum member gave me some hope just the other day with some details of a manufacturer of lung valves who was most helpful. I've now booked an appointment with my doctor to try to get referred.

Keep well.

Keith

[6Bethany in reply to lKeith]

Hope that you get referred , the lung valves sound interesting , looking forward to hearing all about it.

[6Bethany]

Thank you so much for making me so wlcome

[6Bethany]

Thank you Graham, i am sure that i will gain a lot of useful information .

[Tricity125]

Hi Beth. Iam new to. It does help to read these post. Hope your not to bad are. A. Londoner. And. Have you or any one ever gone to Brit lung foundation. Offices. I thing they could do more. But. Maybe they do loads that I am not aware of. I would be. Pleased to hear from any one who as. Had direct help. I have seen people from BLF. At. Breath easy. And all they went on about was fund raising its. Just I am OK. Now. Beenill now 10 yrs. but be nice to know that maybe when I am really bad. That. They might be involved like drop in. Half hour a day. Like care. My sister. Bless her. Was ill. Really ill passed. 2013. But. Most she got was. A. Info. Sheet when I asked. How they could help her. Maybe a little bit Respite care. Or a drop in not a sausage. Sorry to. Coat them. But they raise a lot of cash. Until there's a. Better hold of. Treatment why not not spend some on the really really. Pole with. Chronic or terminal. COPD ers . Well. Enough. Sad. Take care. Beth. And. Let's hear. From. You. And any. Newibs. I am new. It good to express. And let it out that's what's it for. Well. Bless you all. And roll on the. Sun. And sound of summers. Bye. Again. Paul

[Hidden in reply to Tricity125]

Hi Paul.

It's Ben from BLF here. I was interested to read your comments above, so I hope you don't mind me mentioning a few things about some of the stuff that BLF does.

Our helpline can be contacted on 03000 030 555 between 9am – 5pm Monday to Friday. You can arrange to speak to one of our advisers about any non-medical issues such as benefits or social care, planning oxygen arrangements or travel insurance for holidays, or you could speak to one of our respiratory nurses about your condition or medication for example.

As you know, as part of our charity, we also run a network of ‘Breathe Easy’ support groups across the UK where you can meet up with other people who have lung conditions; the groups will often have healthcare speakers giving talks on managing your condition. They also hold social events and they are a great way to meet up and chat with other people who share your experiences. We also run exercise classes and singing groups around the UK. You can see where the nearest groups to you are on this page:

blf.org.uk/support-for-you

We also fund a lot of research projects and campaign work - click on this link for more information: blf.org.uk/what-we-do - I can send you a copy of a booklet which covers some of our work in this area as well if you like.

With best wishes,

Ben

BLF Admin

[Tricity125 in reply to Hidden]

Thank you. Ben. I. Will. Look. When I have more time. All the best. Paul.

[Tricity125]

Sorry. Carole. I thought you was. A Beth.

[6Bethany in reply to Tricity125]

No problems x

[6Bethany]

I dont know what stage that i am at, but I am on a eklira genuair inhaler, does any one have information on the side effects.?