Oxygen when sleeping

[Diane11270]

Hya I have been oxygen for the last couple of months, I am just about getting used to it but I have to wear it no less 16 hrs a day and a big chunk of that is wearing it in bed but a few times I have woken up in the middle of the night and my cannula (I think that's what they are called, little prongs up your nose) has come off so this makes me panic a bit thinking am not getting enough! Has this happened to any of you and if so can it be fixed? xx

Thanks Diane xx

[mrsmummy]

There are different sizes/styles of cannula so do ask your oxygen company for an alternative to try.

[Diane11270 in reply to mrsmummy]

Thank you x

[Plumbob]

Hi Diane -I'm on 24/7 oxygen and had similar problems !!

I tend to pull the sleeve on the cannula up under my chin at night which helps the tubes stay snug around my ears and firm on my nose which helps the 'prongs' stay in place? I also make sure I have plenty of tube under the covers as the weight of the cover can put a strain on the tubes when your moving about.

Hope this helps

Plumbob X

[Diane11270 in reply to Plumbob]

Thankyou xx

[Mandy6513]

You can get little plasters off your oxygen company that will help keep it in place , just ask your engineer when he next visits or phone them and they will put them in the post . Or wear your cannula in a different position

youtube.com/watch?v=1d1Hj7u...(Not working as expected?)

[Diane11270]

Thanks mandy will try them suggestions xx

[winnabago]

Hi Diane, I use a mask that does not come off as easily as to your current problem. You can most likely inquire about a mask where you are obtaining your oxygen. Hope that helps. John

[Diane11270 in reply to winnabago]

Thanks xx

[Catnip]

Greetings

Like Plumbob, I pull the little sleeve right up under my chin, but it can feel a bit strangulatory sometimes. I also put a good amount of tubing on the bed, so that it doesn't pull at the functional end (up my nose). I got a cannula with longer prongs too -- that works. I loathe and detest LTOT but since a lot of the time is spent sleeping, I guess we will all cope. It's better than the alternative, I suspect...

Catnip

[Diane11270 in reply to Catnip]

Thanks, last night I did pull it tighter under my chin, more than I usually would, it wasn't uncomfortable and also put some of the tubing under my duvet and I did wake up once in the night and it was still in place as was it when I woke about 8 o'clock in the morning so that's good, yeah I know it can be a hindrance but like you say better than the alternative xx

[jillysaffron]

hullo Diane,good to hear from u.Try putting micropore tape (just a little) over each plastic cannula which goes into each nostril. Should keep it on.Any sign of soreness on ur face,apply sudocream,and give the tape a rest for couple days..love and hugs Jillyxx

[Diane11270 in reply to jillysaffron]

Thankyou jilly xx

[Bignell70]

Mine comes off about 3 times a night I would like to know how we are supposed to know how many hours we have had it on,

[madametobacco49]

Diane--Get some of those stretchy headbands--that will help hold it in place--Make sure you are tightening that slide piece in front also--Good Luck--MmeT

[Diane11270 in reply to madametobacco49]

Thankyou xx

[madametobacco49]

yw Diane--any kind of headgear helps--I wear bandanas sometimes too-or I use those extra tiny hairclips- about this long -------(are so tiny can kinda hide behide ears in daytime--At night-I usually do just one on opposite side Im laying on--and move it if I turn over--handy--If you get it right the tubing will be clipped to back of ear and is moveable----the clips are like those bigger banana clips but wee so tubing is in middle and teeth keep it on head/hair behind ears) ---I know it is a pain in the butt--I wish everyday I didn't have it--That being said --we must be grateful we are alive and there is something to keep us going-Blessings--MmeT--You will get inventive-and who cares at night how it looks--just so you breathe ok-hang in there

[Diane11270 in reply to madametobacco49]

Thanks for that, yeah i know its not what i would choose but being on oxygen has helped me a great deal xx

[madametobacco49]

Yes me too--I don't kno I quit smoking and just went downhill and now have emphysema--so even with O2 sometimes I feel im not getting enuff air--because of holes in my lungs-just goes thru them-I have CHF from this--but it seems to be getting better--Do you have some days it just seems harder to breath even with the O2?

[Diane11270 in reply to madametobacco49]

I have never ever smoked but have had lung/chest problems since birth, i have bronchiectisis and mild pulmonary hypertension and yes some days are worse than others but alot better since starting 1lt oxygen 12 months ago x

[madametobacco49]

you are on 1 litre? omg --that is wonderful--I am on 2-at rest and 3 when up but some days I have to have a little more-I got a new concentrator and I was so happy--My old one I was having to turn it up to 4 and thought I was getting worse--Got my new yearly one and omg can breathe on 2--I sure told medicare about that--Talk about undue stress---so equipment and paraphernalia --make a difference Ive learned- MmeT

[Diane11270]

Yeah 1ltr for 16hrs a day, i have portables which i take out and used when I am walking around, just over a year ago i couldn't even get dressed with gasping for breath and my whole body hurting so oxyfen has worked wonders for me xx