Emphysema what now.

[grahamrobe]

Hi just a quick one for now..had a ct scan and just received a letter from the consultant who says I have emphysema, but not had any other tests as of yet.

[Louisiana]

Your practice should keep an eye on you and keep you up to date as to how far the emphysema has gone, etc...also help you deal with it. Inhalers, etc.....have you been to a Chronic Pulmonary Disease clinic very helpful. I have emphysema for years and I have Bronchiastasis too...great fun! Be positive and you will live a good life

[grahamrobe in reply to Louisiana]

not been there yet..just got the letter today.. but reading through a lot of these posts here I am not too worried about it ..

[Watfordgirl]

Hi grahamrobe,

I think it's a bit hard to just give someone a diagnosis in a letter without explaining what it means and how it can be treated. There's lots that can be done to help and lots of people here who can and will support you.

If you're not seeing your consultant soon, I'd suggest going to see your GP about maybe getting an inhaler or two. You don't say what your symptoms are or if you already have any treatment.

Be well. Sue x

[grahamrobe in reply to Watfordgirl]

yes I thought so too..as did my daughter..but I pointed out that I had asked him to send the results when he sent it to my doctor.

So he did so it was my own fault really, ah will wait and see and probably go to the doctor on monday morning. And find out what is going to be done.

Graham x

[Watfordgirl in reply to grahamrobe]

I get copied in to letters to my GP too. At least you know and can go armed with questions about your future care.

A little sentence about treating you might have been nice, but the world isn't always perfect. Expect you've noticed! Take care, and when you feel tired it's ok to rest. Sue xxx

[grahamrobe]

Oh yes Sue. only thing I said to the consultant was that I was feeling tired and losing weight, but that would be put down to not complying with my gluten free diet .

And I have a colonoscopy and endoscopy examination tomorrow for that too, falling to bits lol

[Watfordgirl in reply to grahamrobe]

Sounds fun. I do hope everything's all right. Let us know.x

[grahamrobe in reply to Watfordgirl]

yes I will letting you know how it all goes.. x

[Offcut]

Keep PMA and find out how they think it can be best treated. Explain to people that at some point you may need to just stop for a bit no good reason trying to go past your point of breathlessness.

Be Well

[Dedalus]

Welcome to the group - you will find so much information & support here - I have learned more from this great group than from any of the medical professionals.