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[Trouts]

Hi everyone,

Joined this group tonight got COPD struggling to come to terms with how quickly you go down hill, trying to get tips on dealing with this awful condition.

Trouts

[Katinka46]

Hi Trouts. Welcome to this forum. You have come to the right place. I can't help you because I don't have COPD. But lots here do and are very well-informed, helpful and, best of all, incredibly supportive.

Tell us a bit more. What tests, who has given you the diagnosis, how severe is it....

All the best and wait for your new mates to respond.

K xx

[Trouts in reply to Katinka46]

Hi,

I was diagnosed a year ago I take Seebri, Salbutimol and Cimbicort. I've been in hospital a couple of times with chest infections but can't get back to feeling ok, I'm more breathless and getting fatter by the minute (well it feels like) as I'm less mobile than I used to be.

Any info would be much appreciated.

Regards

[Durcot in reply to Trouts]

Hello

I was diagnosed with sever COPD and sever ASHMA 4 months ago. I went to my VA doctor he has me on Spiriva and Symbicort with Albuteral for emergency. Since I've taken there inhalers I feel much better.

Hope you start feeling better, not sure what your taking . I'd watch out for steroids as it's so dangerous in pill form. My doctor said in inhaler form the steroid is much safer.

Good luck and God Bless

[moodygirl]

Hi Trouts

I dont have COPD but do have bronchiectasis which is another lung condition.

I'd say eat a healthy diet, exercise and keep your immune system up. If you do need to take antibiotics or steroids then it's important to take a probiotic as your good bacteria will be killed off thus leaving you vulnerable to more infections.

You'll get a lot of support and advice on this site!

[Hidden in reply to moodygirl]

What are prebiotic & where will I get them

[Trouts in reply to moodygirl]

I never thought of taking probiotics thanks for that.

[Hidden]

Hi Trouts welcome to the site. Those with COPD don't generally progress very quickly, though there are exceptions. A lot depends on how severe you are. Do you know your FEV1 (lung function?). If you are diagnosed at an early stage then you can do a lot to hold your lung function steady and only progress very slowly if at all.

I was diagnosed 5 years ago with mild copd and now at 61 my lung function hasn't changed in all this time. My lung function is in the mid 70's. The doctor told me something else would get me first ie old age!

COPD is a progressive disease, but as long as you don't smoke, eat healthily, exercise and take your meds there is no reason why you can't live a healthy and active life for many years yet. So please don't worry too much. x

[Trouts in reply to Hidden]

Many thanks, I'm quite severe I find walking short distances hard work but I do try.

[Hidden in reply to Trouts]

Oh sorry to hear that Trouts. There are quite a few here at your stage and beyond, so just ask anything and someone is bound to know. x

[rubyred777]

Welcome to the site Trouts

You will learn a lot from all these good people. It seems you don't know very much about your diagnosis. Did you have a spirometry test? What is your fev1, or stage of copd? It helps a lot, if you ask your Dr. questions. It seems many of them, just hand people inhalers, and don't explain their condition to them. Without knowing what stage you are, I would say try to get more exercise. Even if it's 10 more steps a day. Take vitamins and try to avoid infections. Ask any questions you have, and we will try to help you out.

Rubyxx 😊

[Hidden]

G'day trouts,

Welcome to the family.

Only suggestion I can give you is whatever course you have to take please get your Dr to point you to a rehab group. Do not go to a gym.

My wife has IPF (Diagnosed May 2014) and attends rehab twice weekly, all exercises are conducted under qualified physio's.

We have found this treatment of "lung disorders" to be very beneficial in maintaining reasonable fitness.

Best of luck

Will

(Down Under)

Australia

[Trouts]

Hi everyone,

Still on my steroids and antibiotics not much of a change at the moment, shall keep my fingers crossed. Have taken some advice and tried to keep active and have also cut down here's to a healthy 2016.

Cheers!!

Gaynor