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Hi everyone I'm new here I have severe copd would like chat others

[Hidden]

Hi David, welcome to the group. There will be lots of replies to your message as many here also have COPD. I have Bronchiectasis, so can't really help - sorry.

[Hidden in reply to Hidden]

Thank you for reply

[Hidden]

Hello and welcome! I care for my husband who has very severe Copd. If you have any worries or questions just post them - there are lots of lovely people here who support each other. Lots of love TAD xx

[hufferpuffer]

Hello and welcome to the site, you will learn a lot about looking after your copd here

I have Emphysema , it was severe 11 years ago but is more like moderate now.

I've been on ambulatory oxygen for over two years and do a lot while wearing it

Its important to get your flu jab, you should be on the list to have one yearly. You need one pneumonia jab ( one is all you need )

Stop smoking if you do, you will be very glad you did.

Get plenty of gentle exercise ( try get on the Pulmonary Rehab program , ask your doctor ) and try to have a good nutritional diet.

Stay positive and keep as well as possible by avoiding sick people! Any questions just 'post' it.

huff xxx

[Hidden in reply to hufferpuffer]

No intention stopping smoking I don't get our much so a smoke is all I have

[aberdeenman in reply to Hidden]

Stopping smoking is the one single thing that will help with any lung disease if you carry on smoking your lungs will just get worse

[hufferpuffer in reply to Hidden]

Hello David, 11 years ago I used to smoke, 😯you name it I've smoked it! 😇I used to think it was my friend 😆and it took me 8 attempts to stop , I thought I'd never be able to stop !! 😮but with help from nicotine replacement patches I did ! 😊and now I'm so glad I did!!!

30 years smoking has left my lungs in a bad way BUT they have improved because I stopped when I did.

I think the real incentive was watching emphysema take my Mum, it seems we have a genetic type , our bodies don't produce the protein needed to protect us from infections etc., just thinking of my Mum perched on the edge of her chair attached to that huge cylinder of oxygen , ( that wasn't helping her feel any better ) just makes me well up. Please, please care about your health and at least consider stopping.

Take care, hugs huff xxx

[Gold13 in reply to Hidden]

Davidsurman,why? Why won't you quit?

[Hidden in reply to Hidden]

That's crazy! You'll only make your symptoms worse & suffer so much more if you keep smoking. It's the 1st thing you need to do when diagnosed with COPD. Please reconsider, you'll benefit greatly by stopping

[taffie22 in reply to Hidden]

hi david, hope u r well. i too am a smoker and am trying to find a site from which i can buy cheap cigs. do you know of any. thanks from lynn x

[Neo7]

Hi David welcome to the site, you will find all the support you need on this site, if you need to ask a question just fire away. huggs Neo.

[Shirat1]

Hi David, if you like t o chat you couldn't find a better place. Really great caring folks gather here. I don't post often but I read through it daily. You will find funny stories, jokes and compassion and those that experience the same things with this disease. I spend most of my time alone but someone will tell a joke or story that makes me laugh until I can't breathe and that dangerous. Lol Have been so thankful for this forum and think you will too.

Welcome

Shirley

[casper99]

Hi Dave and welcome to the site. you will definitely find plenty of lpvely people on here to talk to and the more knowledgeable members always give great advice if you need it.

Whilst stopping smoking is the one thing that will have the best positive impact on your lung disease, nobody on here will judge you or disrespect your decision to continue smoking. There are quite a few people on here, who do still smoke.

Keep coming on here for a chat and to make some great virtual friendships. xx

[Swerv]

Hi, i was diagnosed nearly 4 months ago, smoked over 45 years never thought i would give up. Checked the internet after my diagnosis, found that the number 1 thing to slow the progression is to stop smoking. Reduced my smoking immediately, went from an average of 35 a day to 20, 12, 5 and then down to 3 a day. Stopped smoking after 12 days, now nearly 4 months. Still have cravings but they are getting less and less. What does help when i have a glass of wine at night is an electronic cigarette.

[hufferpuffer in reply to Swerv]

Good for you Swerv, you are doing really well😁 I don't think I would still be here if I hadn't stopped when I did!

Bet you've saved a few bob as well😁 huff xxx

[Swerv in reply to hufferpuffer]

Hi Huff, not saved much money as cigs out here are only just over a pound a pack. But i have noticed after only 4 months improved breathing and i can't get over my sense of smell. Fortunately not put any weight on as i had a glass of water every time i had a craving.

Merv

[hufferpuffer in reply to Swerv]

Brilliant! I wish I'd been as sensible as you! It's not good to carry weight with copd. I'm very pleased you are feeling the difference in your breathing!

Stay well!😊 huff xxx

[katieoxo60]

Hi Davidsurman, welcome to the site. There are lots of people on here to have a chat with who visit the site every day. We all have lots of experience on lung health problems too as well as many other topics, we come from all walks of life. Hope to see you on here frequently now you have found us .

[rubyred777]

Welcome to the site David. Don't feel intimidated because everyone was preaching at you about smoking. Thats your choice and you already know it's bad. Feel free to ask any questions you

may have. How long have you had copd?

There are people on here, that have had it many years, and are still doing quite well. Good luck to you, and I hope you'll stay with the forum.

Rubyxx😊😊

[Hidden]

I was diagnosed 8 years ago with severe COPD. However I was having an exacerbation at the time and a further test two years later graded me as moderate. I am now graded at the pointy end of severe, again.. I gave up smoking 6 or 7 years before my initial diagnosis. I daresay had I not done that I wouldn't be here to tell the story. I found quitting smoking extremely difficult but amazingly I did it.

No one is preaching at you about smoking, they are giving you excellent advice that will add years to your life and make your remaining years far more pleasant, gasping for every breath is truly awful. There will be many good years ahead of you if you take good care of yourself.

I wish you well.

[2malinka]

Hi David

Welcome to the site. I too have severe COPD and I found this BLF Forum a God send.

Regards

Malinka

[Sheilab123]

Hi David and welcome! I have severe copd as a lot of us do on here. It's been a lifeline for me, with the tips and the humour, always someone around to help so never feel alone. Take care xx

[pianoman]

Welcome David from the the other side of the ocean.(US) I have severe COPD. My lung function is 16% and my 02 is at 8L while doing anything. I am still mobile. I still drive to work every day. I will keep on going as long as I can. Lots of challenges every day. If I can answer any questions I certainly will.

[kydam]

Hi everyone, I am also new to the site and looking for support. I was recently diagnosed with copd. I havent had a fag for 10 years although had smoked 20 a day for 30 years. Id gone to the docs with cough, swollen ankles, infected bites on my legs following a trip abroad, a wheezy chest. Xray was clear. Blood test ok. I failed the breathing test badly and when pushed for a percentage, my gp said I had about 65% of what I should have. Spiriva made me feel 100% better. Went to nurse a month later for instruction on breathing exercises and she said I had asthma and the copd diagnosis was wrong. Does it make any difference? I think she is wrong. I know asthma is more reversible but is it copd or asthma I wonder?

Any comments/thoughts would be welcome thanks.

[mazinuk]

hi im also new to this site and welcome you i have found it to be a magnificent cavern of of information and support and am looking forward to get to know everyone