CF diagnosis

[Toci]

I found last night's BBC programme, Call the Midwife, fascinating due to learning about the 'salty kiss' diagnosis of CF. A programme I always enjoy and the historical info about CF just added to it. Did any of you CF people see it? How good/accurate did you find it?

[Daxiemad]

I don't have CF, so comment on the accuracy of last night's "Call the Midwife," but before they had even come up with a diagnosis of CF I had already worked it out!

[Toci in reply to Daxiemad]

Me too. Shows how well educated we have become through BLF!

[pergola1]

I saw C the M which I enjoy very much. I think it very true to the time it was set. I remember the baby and the salty kiss. I wonder what happens to make it salty. Have you read the three books by Jennifer Worth on which the film was based.

[Toci in reply to pergola1]

I haven't read the books Pergola, have you? It does seem fairly accurate.

[Daxiemad in reply to pergola1]

I have read all the books, but the last two series are not based on the books, they pretty much used all the stories up in series one

[Hidden]

I watched it, loved it. I don't have Cf but belong to a FB group for CF and Bronchiectasis sufferers and had a conversation on there about it. I didn't know about the salty kiss so I looked it up. This is from Boots web md:

"Another hallmark of CF is an unusually high concentration of sodium and chloride (salt) in the sweat. The defective CF gene causes faulty chloride movement in CF cells. As a result, parents often report that their babies "taste very salty" when they kiss them."

[Toci in reply to Hidden]

No, I had never heard of it either, which made me wonder if it was generally known among the CF population.

[cofdrop-UK in reply to Toci]

Yes it is generally known to cfers. Most folks with bronchiectasis will have a sweat test to detect salt content in sweat, a test to check if the bronchiectasis is due to cf.

cx

[Toci in reply to cofdrop-UK]

Thanks cofdrop. It does amaze me sometimes just how much we know about our conditions that isn't generally known.

[Lakeland]

Made me think how much smaller the chances of the baby living were then against where we are now it might not be cured but the survival chances are better than they were for that generation.

[Toci in reply to Lakeland]

Yes, that point was made in the programme - about how much smaller the chances had been for survival for the proceeding generation - as the baby's father had had a brother who died in infancy. Medical knowledge is constantly growing, and we are all thankful for it.

[needtobreathe]

What is CF I didn't see the programme last night, but I have had bronchiectasis since toddler, am 68 now.

[Toci in reply to needtobreathe]

Cystic fibrosis.

[needtobreathe in reply to Toci]

Thanks for the reply, should have known really, been in hospital alongside CF sufferers, brave people.x