Hi,Can anyone please tell me if there is any support groups for people with pulmonary fibrosis in the Wirral?

[slinky4]

My Mum has it and is feeling very isolated ,it would be great of there was somewhere she could go and meet up with others who understand.

[susie-s]

Hi my name is Sue,I run a support group in Frodsham for people and their carers with Interstitial Lung Diseases if that is any help ? We meet every 4 weeks in the local health centre.You are more than welcome to join us if its not too far for you to travel.

[slinky4 in reply to susie-s]

Hi Sue,Thanks for the reply,its for my Mum and unfortunately she doesn't drive so its to far for her which is a shame.Thanks again .

[susie-s]

Sorry I couldn't help. My mum has IPF and that's why I started the group so she could chat to others in her position. I will ask about for you.

[slinky4]

Thanks Sue,my Mums had it for a few years now but has deteriorated a lot this year its getting her so down and I know it would help her having someone else who has it and understands .

[susie-s in reply to slinky4]

Hi again, dont know if its any use to her but there is a breathe easy support group in Moreton at the community centre every second Tuesday in the month 2-3 pm( its advertised on the web site).

my mum has had it for 7 years now and is deteriorating now too. its a real shame she couldnt get here we have a lovely bunch in the group and keep each other going. take care