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terrzy profile image
6 Replies

i have been on oxygen for over a year at home.my consultant even arranged for me to have portable cylinders in the car.i am under the hospice nurse[brilliant] who refered me to copd nurse.copd nurse says i dont need oxygen and all my equipment has been removed.i feel so confussed.

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terrzy profile image
terrzy
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6 Replies

No wonder you're confused. I am too! Surely the consultant would be in a better position to know the best treatment for you, rather than the COPD Nurse?

I'd be ring your consultant to find out what the situation is, and if there's been any improvement in your illness to warrant this change of treatment.

Sandra x x x

libbygood profile image
libbygood

Sounds a bit odd, I agree with Sandra you need to see your consultant or maybe discuss it with your GP.

Lib x

Is4bell4 profile image
Is4bell4

On what grounds did the nurse furnish you for taking away your oxygen?

Did she perform more tests? Was she advised from your consultant?

My first port of call would be to get back to her and ask for answers, then

tell her you are getting in touch with your consultant. She should never have

sent you away without a good explanation. Bad. No wonder you are confused.

xx Ros xx

Is4bell4 profile image
Is4bell4

Gosh it almost sounds like some of the cut back issues in the NHS.

xx Ros xx

Crossed my mind is4bell wouldn't put it past them

maruth profile image
maruth

at one point my concentrator was removed,and i was left with just 2 cannisters......during this particular incident i felf very strongly that cost was playing a big part......

i now know that she had been advised to keep costs down.

Hope you get sorted soon terrzy,

ps i refused to have this lady in my home again

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