Hi all. It seems as though loseing weight and exercising HARD! is working. I'm breaking record distances and times all round.
Iv'e done timed favorite walks of mine and kept records over the last 3 years since leaving hospital after a very long and eventful stay.
Ive just done a new record distance on my exercise bike in 15 mins, 2.93 miles, It hurt over the last 5 mins but then it generally does and I shifted a fair amount of the old sputum too which can only be good.
After a couple of years of remaining pretty static I decided to up the pace a bit and push the boundaries. Iv'e been told that with my condition I should really be getting worse or with luck staying the same but I am still finding improvements, The problem is, it seems as though they have to be earned by hard work.
Its a shame that somebody can't just wave a magic wand, I wish someone could but it seems as though its up to us to help ourselves along side the medical stuff.
What is also truely amaizing is I am dropping my steroids too and I am now down to 12 mg from 20 mg and noticing no change. Iv'e been on 20 mg per day for 2 years now so its great to be lowering the dose, even though they have been good to me with no real side effects.
Iv'e heard nothing from the transplant team but then thats how it is untill they find you a matching pair of lungs but if I keep improving the way I am they'll be taking me off the list, saying I'm too well. chance will be a fine thing.
I reckon when I can beat my 80 year old Dad at walking up one of our local Malvern Hills then I'm getting somewhere, untill then I'll keep on striving to be the very best I can.
Care to join me, all you good and kind people out there.
Tony. Let's break some records together eh' and feel good!!!
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Well done Tony, I don't have a exercise bike otherwise I would be joining you Its amazing what can be achieved through regular exercise and how much more health can be improved.
Hi BlakeyC, Now we have better weather I don't use the exercise bike as much, I prefer to walk outside but if the weather takes a turn for the worst then I'm on it.
Exercise is the only way of improving our situation I believe, with the assistance of the medical profession also.
Hi Tony, Well done like yourself am pushing myself past any targets that have been set for me I can certainly feel a improvement in my lungs my mobility has come on leaps and bounds or until my lungs tell me, the hardest part is trying to evade Fran half the time, Good Luck, MC
Hi MC, I hope you got all that information on transplant assessment I posted, you'll cruise it I'm sure.
Keep dodgeing Fran and you'll soon be as fit as a Butchers Dog and she will have to run a lot faster to catch you. Ha Ha.
Tony
Well done Tony
You can't keep a miracle man down. Will join you for the walk as soon as I finish the antibs. Goal for next week tho is get out in the boat as long as the weather allows.
Take care and keep up with the improvements, prove them all wrong and I will follow your lead.
I may be miracle man but you are miracle woman Tina. I can't believe what your planning to do but its brilliant that you are.
You have a terrific attitude and like me have decided to make the most of what you've got. Well what else can we do eh'
Have a great time on that boat of yours and I hope the weather is kind to you also.
Its a shame your not closer to Malvern, but the walk offer is alway's open.
You seem to get through a lot of oxygen, have you tried a conserver to make it last longer. You only use oxygen when you breathe in instead of a constant flow.
Good to hear it peeg, Living on the Malverns has its drawbacks as there are no easy walks round here, its all ups and downs but its great for getting you working hard and the views make the suffering worth it.
The weight loss is almost complete as I am only 2lbs off the transplant consultants target of 12 and a half stone. I had to slow the rate of loss as it messed up my INR warfarin bloods test but Iv'e now lost 20lbs in total.
Thanks peeg, I do feel so much better now the old me is looking back in the mirror and My belly dosn't get in the way when doing up my shoe laces. Ha Ha.
Yes, you feel better inside and out. I lost 20lbs a year ago. A few lbs crept on when I had a 3 month infection and could hardly get off sofa, I need to do something about that asap
Well done from me too! You are an inspiration. Half the battle is geting into the right state of mind to keep on exercising ~ it's so easy to slip back, give up and feel sorry for yourself, as I do quite often! I shall keep on with my daily jogging on the spot ~ well I don't have a dog to walk! ~ it really does make a difference. So thank you.
Your right ipscribbla, a lot of the battles are in the mind but once you start seeing the results of your hard work are paying off it drives you on. A good combination of exercise and eating sensibly can really help our condition's.
Keep up that jogging and maybe we'll see you in your local London marathon next year eh'
Brilliant to read that you are doing so well, I live in Hereford so Malverns not far away. I managed a walk up them a couple of years ago, and found it a struggle. Would love to go up them again, but would need to do a less steep route, have you any suggestions where Lottie and I could go for toddle.
Thanks Daxiemad, there are a few routes that are not too steep. The one is from the Black Hill car park, just along from the Malvern Hills Hotel and the other starts close to the Wyche Inn where you can head either North or South up a more gradual slope.
It would be good if a group of us could meet someday and take a SLOW! walk.
Maybe I'll blogg an invitation to anyone who's interested one day and see who turns up, could be fun.
I'll be here, but then I live here so its easy for me. Most of you live miles away. I'll be happy if 1 turns up so I'll blogg an invitation to all soon and we'll see what happens.
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chance will be a fine thing. 
