So respiratory nurse called last night with good news (actually think it's a first) ππ€£.
After being on 40mg pred for best part of a year then weaning down from 40mg to 5mg I can now do 2.5mg for 4 weeks, if feel well enough after that, can finally stop and come of putrid things π but if symptoms of adrenal crisis back up to 5mg and get advice. My gosh might get back to a full nights sleep again oh and fit back into my old clothes! π€£ππ