😳😬😅🤣

[EmmaF91]

Hi guys

Something to hopefully make you laugh 😉

So I am under both secondary and tertiary care but usually I stick to secondary as they see me more. Because of my weird way of accessing tertiary (transferred from another tertiary and then went to research dept for early access to Benra) I haven’t yet met all the team like you’d normally do even tho I’ve been their patient for 2 years now. Case in point I haven’t met any of their asthma nurses and don’t think I’ve spoken to them all either (I’ve only called that number twice before 😅) As I said usually contact local hosp when there are issues or if I have a question and they are usually ok (less so since they’ve gained more nurses who don’t understand severe asthma but hey ho)

I swapped off of prednisolone and onto kenalog injections just over a month ago. Was doing fab but some issues now (excessive salb use) so called local and asked for plan if things worsen. Do I get pred? What dose? Etc etc. Question got ignored twice (by different nurses) so decided to call tertiary.

‘Oh hi Emma. I feel like I know so much about you, even tho we’ve never met!’

I do not think this is a good sign... 😳😳😳😂😂😂

(And yes we’ve formulated a plan pending on spec cons approval)

[Claire-Rose]

The same thing happened to me I email my asthma nurses a lot but don’t really see them I went to get my xolair injection and one of the nurses came and said why do I feel like I know you by your name but not your face 😂😂😂

[EmmaF91 Community Ambassador in reply to Claire-Rose]

My fav AN at local (the one how usually

Does my injections) knows my hospital number. Her and the other 2 old ANs (we have 3 newbies and 3 oldies) can recognise my voice (and I them 😂).

But someone I’ve never met or spoken to before (Or even emailed) was a bit 😳- 😂😂😂

[Claire-Rose in reply to EmmaF91]

At my local my name is known by a and e,the assessment ward, the respiratory ward and icu so when they hear my name they don’t even have to ask where I am they just come and see me. I have to have my xolair at my respiratory hospital ( royal Brompton) some nurses remember me from when I was an inpatient but the proper asthma nurses only know me through emails as I am new to xolair and have only seen them since then so they find it so exciting when they finally see my face 😂😂😂