Morning

[Tracey1972]

Morning hope all well with u all, well I came out of hospital for a second time Sunday and now waiting a bed in London rbh as I can’t breath properly still can’t even leave the house at the moment it’s so bad on regular nebuliser and 40mg prednisone that’s my maintenance plus other stuff they say there’s no infection or wasn’t when I left Sunday but the rbh have spoke with me and they r sorting a bed out for me and want to do tests and IV hydrocortisone said could b there for 3 weeks but the way I feel at the moment I don’t care just want to get better again or as well as hope everyone else doing ok take care update u when things start moving

[Redhots7]

Bless your heart !!!! Seems like you are in for treatment more than you are home ? You are so strong, hang in there sweetheart 😘

[Tracey1972 in reply to Redhots7]

It does feel like that some times especially these last few months just want it sorted now or some sort of normality and b able to walk about again resorting to a wheelchair to get about and that’s not me hate being so useless

[Billygoat]

Dear Tracey,

What an absolutely rotten time you are having. I do feel for you. Fingers crossed that RBH can come up with a bed quickly and get you back on your feet. I am rooting for you and I know lots of other people will be too.

Jo

x

[Tracey1972 in reply to Billygoat]

Thank u I will get there

[Echoblue]

It’s so horrid when it’s all out of control. So pleased to hear RBH are pulling their finger out and getting you in. I hope you get back on a more even keel very soon. Good luck and take care xx Pam 🤗

[Blue-Breeze]

All the best Tracy. I hope they sort to out x

[Mark-f]

Hi Tracey ... sounds like your having a real rough time my maintenance of pred is currently 25mg which I increase to 40mg when needed. Have been maintained on that for nearly 3 years. I’m at the Brompton I go once a month for my biological treatment (mepolizumab) it’s a great hospital , I’m sure they will sort you out .... stay strong. I’ve been where you are and there is hope !!

Good luck

Mark

[Tracey1972 in reply to Mark-f]

Hi thanks for the support yes Brompton are great they know what there doing I have been on 40mg since I don’t know they can’t get them to drop as soon as I drop it by a single dose I can’t breathe really struggling be glad to get it sorted and be able to breathe again better hate feeling like this hope your treatment going good