Mepolizumab

[Jeecamgunn]

Anyone receiving mepolizumab injections. Found them fabulous then after approx 7 months old symptoms returned. So disappointed. Will things improve again might this be just a blip ?

[Mintoes]

Hi, I had an incredible 8 months then started to need steroids again. Initially I was reducing steroids and then stopped completely. Once the steroids stopped the symptoms came back. Since starting Mepo I have slightly fewer courses of pred, for less time and better in between so overall improvement. Hope this helps .

[Josephone]

I have been on mepo for two years and my asthma condition has improved significantly. I had a bad asthma issue six months after I started but feel great now with no steroids nor chest infections. Give it time for the medication to kick in. Hope that helps

[Jeecamgunn in reply to Josephone]

Thank you. Reassuring x

[MELNEL]

Hello 😃 I am on mepolizumab injections and you right it was good and it has improved some of my asthma, firstly I didn't get any chest infections and didn't took steroids over a year now. What is great. 😏

But my breathing is not great ATM I had 24% lung volume back last year, now it's 15%

Not very good... Spoken to my doctor in hospital who always comes over when I get my injection to see how I getting on.

So I still should continue the injection because I had no attack or bad infections and even better no steroids

I got my Fostair inhaler updated to 200/6 now. If it is not improving by end of year I should consider to get a lung transplant. Because there is nothing else he can do to help me with my breathlessness. I wish you well that your doctor maybe change something that it will improve. 🌹🌹🌹

[Jeecamgunn in reply to MELNEL]

Oh sorry. Hope you improve soon xx

[Jsc3]

Hi just to say I am on mepo injections .have had 3 so far .no side effects.feeling great .also started to swim most days so have lost weight .is it mepo or weight loss .time will tell .

[Jeecamgunn in reply to Jsc3]

I have been fabulous for 6 months but finding it hard to get over my first chest infection.was enjoying being well hope I get back to it. Thank you all for your helpful comments x

[Jsc3 in reply to Jeecamgunn]

I also hope you get back to feeling better soon.

[Joan_Public]

Hi, I have been on Mepolizumab just over a year. Before that, I tried xoliar but it made my symptoms worse. The mepo took about 6-7 months to see an improvement during which time I still took a few courses of steroids. My last course was around jan / feb this year.

Just recently, I have felt my symptoms worsen. However, I think this is due to a combination of triggers: severe stress, worsening of another health condition, pollen, close weather and increased exposure to dust because of decorating / diy work. I don't think it is the mepo not working quite as well and i am holding back from starting the steroids.

A chest infection is a pretty major trigger of worsening asthma symptoms imo. It can take weeks or months to get over it. So this could be a reason why your symptoms have increased and not necessarily because the mepo is no longer as effective for you.

I hope you feel better soon

[Jeecamgunn in reply to Joan_Public]

Thank you. My steroids and antibiotics seem to be kicking in at last. 👍