Ciclesonide (Alvesco)

[SteddyEddy]

Hi

Is anyone else on Ciclesonide (Alvesco) along with another inhaler such as Fostair?

Thanks

[Wheezy19543]

I am

[SteddyEddy in reply to Wheezy19543]

Did your GP prescribe it or the hospital? Someone has recommended I ask my GP for it as I struggling to get off steroid tablets. I can’t find much about it.

[Wheezy19543 in reply to SteddyEddy]

Hey,

My consultant prescribed it. It comes in a 160mg dose or a lower one can't remember the dose. However if you have them I recommend taking the MDI version of both due to them giving a side effect of shaking when having the nexthaler.

[TuckBox2]

I was on Xolair for 4 years, it seemed to work well in the 1st 2 years, then I had a bout of pneumonia and things seemed to get worse, I was having lots of exacerbations, and having to take prednisolone for 5 to 14 days from 40mg up to 60mg and then weaning off. It seemed no sooner I was off preds, I was back on them again. I heard about Mepolizumab last November and I was told I would be put on it as Xolair was not helping me. I was quite bad in February 2017 and had 8 days in hospital, I was on IV abs and on 40mg pred for 3 weeks and weaned off. They stopped the Xolair in March and I had my 1st Nucala (Mepolizumab) in May. I have been having the 1 injection (Xolair I had 4) every 4 weeks, I have had no adverse effects.

I have had 1 bad day since I started this, I started coughing when I woke up and my wife said I should go to my GP. I went for an 11.50 appointment was GP examined me and could hear a slight wheeze and prescribed ABs, I was explaining what had happened, started coughing and could not stop. My GP ended up calling an ambulance to take me to hospital, the paramedics nebulised me in the ambulance and by the time I got to A&E things had settled down my PF had risen to normal level and I was sent home about 6.30pm.

I had my inhalers (Cyclesonide & Formoterol) swapped to Fostair 200/6 October 16, that has helped get my PF back up, after a few weeks I have been getting 520+ 2 or 3 times a week rather than once or twice a month, where I was normally just getting 380 - 450.

[mmmp4cj2]

I've tried this combination. Are you on full dose fostair i.e. 200/6 2 puffs twice daily or 100/6 4 puffs twice daily? I felt ok on it. Ciclesonide is a fairly new steroid - alvesco is ultrafine particle size so good for small airways and there is some evidence certainly in theory that is is less absorbed systemically than other steroids. Do you have eosinophilic asthma? Which part of the country are you based? I think some asthma consultants use it before thinking about the injectable biologics to try to control the inflammation