How do you feel ......

Hi Everyone,

I've been a member here for about 9 months or so but I've only recently felt comfortable commenting on the various posts. I just wonder how you feel when you access a profile ( like mine ) where someone has died as a result of their asthma. It's because of this that I didn't reply to many comments as I felt uncomfortable and didn't want to upset anyone. I'm not naive enough to think that I am the first person on here who has lost someone to asthma but as I said I wouldn't like to upset anyone.

I think this forum is amazing and I wish it had been here when my daughter was alive. It's also great to see how far AUK has come since I first contacted them way back in 1987. I'd like to thank everyone for their courage in sharing their fears and triumphs and hope it continues for a long time to come.

Take care. LIZ x x

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Hi Liz,

hope you are keeping well and asthma under control.

have seen on your posts how mucth you help spread the info on asthma.

lots of love glynis.

dont know what I would have done without AUK as dont know anyone in my family and life

with it,and through AUK have made great friends for life and lots of support xxxxx

edit-your daughter would be so proud of you ,helping others with asthma xxx

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Thank you Liz for posting. I see you as very brave to come on here when you have lost a dearly loved daughter to asthma. You give hope to those who may have lost someone close-to. That life does go on, just not quite in the same direction as before.

Myself, I have not lost anyone to asthma but almost lost my dad to diabetes when his GP put aches, pains and thirst down to being 65. Fortunately a second opinion confirmed diabetes - sugar level of 32! Insulin dependent from then on but he lived for another 10 years. I so wish there had been forums like this back then.

Please Liz, do continue to take part in the forums. I have learned such a lot from AsthmaUK members.

Moira

PS Born 1980, my younger daughter was allergic to milk and wheat but GP said no such thing as milk or wheat allergy. I still bang the drum on that one.

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hello liz

My wonderful father died of asthma aged 39 (I was 12 and already had asthma & we used to help each other thro attacks). For many years I tortured myself over it, imagining his final hours and feeling guilty about being at school when he had the attack.

Later on in life I had psychological therapy which helped me understand that, firstly, he would have lost consciousness very quickly, and secondly, I wasn't to blame for not being there & could have made no difference to the outcome.

The most important thing the psychologist said was, how did I think my father would felt it if he'd known I was going to grieve for him & blame myself my whole life? She helped me see that I owed it to him to make the best of new medications which weren't available when he died and to live life to the full.

However I can't imagine what it must be like to lose a child, that's in a different league of sorrow altogether.

I think it's good to talk about these things - there shouldn't be any unmentionable topics - so good on you Liz, and for coming on here to support others. I'm sure your daughter would have been so proud x

[KateMoss]

Hello Liz,

I am sure many of us are grateful for your mature input and knowledge that you share with us.

Thank you!

Being brittle astmatic myself, I have over the years met many other brittle / severe asthmatics in hospital and elsewhere, made friends and sadly lost some of them.

Thank you for the courage to share what you have with us.

I have been in touch with AUK since 1989 when I was first diagnosed with asthma.

Kate

xXx

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Hi Folks, I just want to thank everyone for their kind words and taking the time to reply to my post. It was really encouraging to read what you had to say and I look forward to being on the forum for a long time to come. I wish everyone well and please feel free to contact me if you feel I might be able to help and that pertains to me too I certainly won't be afraid to ask for help when ever I need it.God Bless. LIZ x

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Liz, loosing a loved one if difficult but to loose a child must be the worst experience possible. The fact that you've gone through so much and can now use that pain and loss to help others is something to be proud off and hope you continue to help and offer support to others.

Chris