Hi guys I wanted to come share my story with you all x

[orchidcass77]

youtu.be/gbhcRHG5fn8(Not working as expected?)

[Helloshelly]

Thank you for sharing. We have lots in common with our story of finally getting a diagnosis that could be treated and educated. Faith, hope and love to you and your family. Keep up the walk as you are worth of moment of it! Lots on the info out there and writing down questions as you think of them . . .journal . . .and taking it with you to doc helps me. Take care.

[orchidcass77 in reply to Helloshelly]

Thanks Hun yeah I have a black book and have written down lots. That's why I'm doing videos too I think my story is all too familiar to too many and it needs to be heard. Thank you hun, sending you warm hugs x