Hughes syndrome anyone ?: Hughes... - Anticoagulation S...

Anticoagulation Support

3,932 members1,386 posts

Hughes syndrome anyone ?

daisyd profile image
2 Replies

Hughes syndrome, Antiphospholipid syndrome, sticky blood all the same condition but caused me to have DVT during pregnancy, low birth weight baby cause by clotting in the placenta. Heart attack following long hall flight, blood clot again

I am now on Warfarin range 3 to 3.5

I had terrible brain fog before I was put on Warfarin, their is a Hughes syndrome site on here which may be interesting to a few people on here

Karen

Written by
daisyd profile image
daisyd
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Lf981400Q profile image
Lf981400Q

Sorry to hear that you have Hughes Syndrome, I wasn't diagnosed until I reached 60 after suffering a big Stroke, where I was paralysed from the neck downwards. It now shows that due to miscarriages back in the 1970's and a Blood Clot on my right lung after having my gallbladder removed in the 1990's that it was found. I know a few folks who have this disease, but it is better diaagnosed earlier than later, and long before the blood clots and puts one in jeapordy of having a stroke. I do hope that all goes well for you Karen.

daisyd profile image
daisyd

Than you, thank goodness I have been diagnosed now. Not many people are pleased to have had a heart attack, but it saved my life, now on Warfarin hopefully I won't have any other blood clotting events. Things have really improved but still people need to be aware of it. Thanks for answering, hope you are ok, I dread having a stroke

Karen

Not what you're looking for?

You may also like...

bloody mucus/headaches

I'm taking 12-mgs of warfarin for antiphospholipid syndrome. I've been getting frequent headaches...
manosteele profile image

INR levels and warfarin dosage

my mother in law has been taking warfarin since she had a DVT about 10 years ago. She had a INR...
Pepper56 profile image

Anyone with experience of Sinthrome?

Can anyone tell me: How often you need blood tests if you are on Sinthrome and whether they are...
Mrspat profile image

Warfarin to Edoxaban

I have for the last few months been prescribed 60mg Edoxaban after 10 years of taking Warfarin...
jackdaw50 profile image

Corona virus and warfarin

Is taking blood thinners for a blood clotting disorder is warfarin an underlying health condition...
Lizp78 profile image

Moderation team

AnticoagAdmin profile image
AnticoagAdminAdministrator
Suebo2 profile image
Suebo2Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.