Any ladies on RIVAROXABAN 10 mg experience bladder infections, frequency , oversensivity in vagina, pressure, rush to pee?

[Bloodredroses]

Any ladies on RIVAROXABAN (Im 74 On 10 mg 5 years . 1 year these symptoms . ). or other blood thinner? Has experienced bladder infections, Urinary tract infections, frequency , real oversensivity in vagina, pressure, rush to pee? 100 % sure it’s the cause, Proof is I forgot to take meds on XMAS trip . 5 days . No Rivaroxaban . All these symptoms stopped totally in 24 hours. Normal bladder! Normal pee frequency etc. Started Rivaroxaban again , all symptoms back next day , have Had ALL TESTS MRI ultrasounds, cancer tests - nothing . Culprit is the Rivaroxaban . I drink enough water, if a lot more pee. Asked APS Heamatologist for email advice on this, asked if can change . (Not to Warfarin.) No need . Thought I had elderly bladder aymptoms , I DONT. Anybody experience this with Rivaroxaban or other blood thinner ( name) ? Sick of it. Thank you lovelies. H N Y 👋 😘

[Deejay62]

I’m on edoxaban, I recently started it after years of warfarin. It seems like they’re taking a lot of people off warfarin. I don’t feel any different. I still feel awful. I do take a lot of diuretics and a cocktail of medication because of heart failure, which have diuretics in them but I’ve noticed nothing different.

I hope they change it to another one. All the best

[Bloodredroses in reply to Deejay62]

I’m sorry you don’t feel well. I understand . The feeling of awfulness, I don’t want another blood clot in lung, my blood platelets are dodgy , statins I know also awful but I don’t want a stroke. Blood pressure tablets because I hate the af fib, which is better on low dose B P meds. My cardiologist said it can even reverse slight thickening of muscle ( the one that axing to heart not within. Sorry I don’t know medical names . Maybe the osteo arthritis in knees and all Over might be the cause . Which one ? I give up .🤣

[Deejay62 in reply to Bloodredroses]

You shouldn’t be suffering. When you stopped taking it, which was risky, all those symptoms left so that’s responsible. There are many DOACs. Like you I also have a lot going on but I believe mine is my illness mainly. I have Afib which is made worse by heart failure, I also have severe pulmonary hypertension. I can’t take statins so I was given ezetimibe.

[Bloodredroses in reply to Deejay62]

Sorry to hear that . I knew 5 days was OK . Previously before operation Haematologist told me to stop taking 5 days before start next day if no bleeding . It’s called Bridging . My bag with meds lost . They know background of my 1 clot and testing for years after , know it’s not risky for me . If risky , one dies not stop even before operations . Yes it’s to blame . Bladder urgency stopped . Felt normal it was great . Hoping somebody on here had same on Rivaroxaban and swapped to other anti coagulant blood thinner ,

[Deejay62 in reply to Bloodredroses]

Hopefully someone will come along. All the best

[Suebo2 Moderator in reply to Bloodredroses]

you should not stop your rivaroxaban for 5 days- ever, unless properly bridged with injections. The beauty of the new tablets is that bridging is not required- miss one/two days (depending on renal function) have operation and then restart as soon as safe or, have some injections post op. Please please question stoping for 5 days- I’ve known of patients having events when stopping for so long- but it does all depend on one’s risk. But please question in future

You might be able to swap to another tablet?

I hope that it all works out for you

[Bloodredroses in reply to Suebo2]

I have stopped for 5 days before with no bridging injections. For procedures. I have done this twice . Low risk . It was under Haematologists instructions always. I did mention I LOST a bag travelling over Xmas . All Meds, no way over Xmas could replace . I was home in 5 days . It was ‘10 mg ‘ so not high dose . haematologist reduced my dose from 20 mg a year ago . Not a high risk . I did drink pure grapefruit juice for the 5 days . I had a tiny skin scrape accident and bled , blood was still thin . If I was high risk it would have still been a trip to A and E locally to obtain more . I have nt had E P for 5 years blood levels negative for clotting . Plus I did mention that I had emailed Haematologist, ( please see ) that I am waiting contact or appointment to discuss CHANGING to other alternative blood thinner . Maybe you missed all that? Thanks for your concern though wave 👋

[Suebo2 Moderator in reply to Bloodredroses]

thanks for replying -n sorry if I missed some of your information - take care

[Bloodredroses in reply to Deejay62]

Sorry to hear that Dee jay , yes blood thinners are awful 😤 😡 .

Warfarin is so old . Hassle . New anticoagulants should be able to replace and set people free of clinic visits tests food restrictions .

If you can find your level And manage your condition , you are doing well .( Specialists have said this to me) sing that Bob Marley song 🎶 sing 🎶 Dont worry , everything’s going to be alright 🎵 ( for you )

💕

[Suebo2 Moderator]

first of all why are you on rivaroxaban ?

[Bloodredroses in reply to Suebo2]

Primarily because my Haematologist Specialist lead told me to originally. I had an E P probably due to APS . Originally 20 mg reduced to 10 mg . Hoping somebody one here had same symptomatic reaction . Why?

[Clotgotten]

Hello, I'm not currently on blood thinners but do have these symptoms since 2019 - I've done a lot of reading on it. Depending on your age may be hormone related (eg peri-menopause or menopause) in which case topical eostrogen is supposed to help (no risk of clot if transdermal according to everything I have read.) Other option is underlying infection which may not show up in lab tests. Usually treated for this, if suspected is 6-12 month daily antibiotics (what I'm currently on). Otherwise another option is Interstitial cystitis. Hope this helps. I am not a doctor, this is info not advice.

[Bloodredroses in reply to Clotgotten]

Thank you so much for replying . It helps a lot because I have been reading a lot also. I also came up with Interstitial cystitis.

I am 74 . It’s age related 100% I never had this until 73. I’m Not sure about hormone ? Could be , hormones could be dropping at faster rate now 75? Could be cause of UTI ( Urinary Tract Infections . )The organs bladder bowel ( all drop with gravity and get closer together in my case I feel it. If bowel movement time I feel Pressure on bladder. I was told by Doctors and Urinary Clinic Nurse to try D MANNOSE . A supplement of a natural sugar type source ( mine is from Birch trees. It keeps balance of PH in bladder plus concentrate Cranberry capsules. I drank cranberry juice , diluted ginger , no white sugar , D Mannose . Good careful hygiene below . Nov Dec no UTI ! Weather freezing temp 1 night , this week then infection.Autoimmune condition APS ( cause of clot originally reason for blood thinners. ) funny thing is, the day before infection I had stopped blood thinners as was supposed to get injection into shoulder for arthritis .cancelled due to unwell. So less blood thinner than usual ! Still started another infection 😢 odour from urine but clear colour as early . G P said do another urine sample so they can keep analysing the Bactria type each time . I am now referred to a Unitary Specialist soon . Might help them to I D infection type down. Sweating bullets and cold sweats whilst infection. ( Auto immune ). I have prescription for the Sachet GRANULES antibiotic drink . That worked last time FOSGOMYCIN . Other tabs capsules did not , have to do Urine specimen today before take antibiotic . This time 2 months between infection ! Yeah but still Sad . I am sick of YOO regular bladder infections feelUnwell with it . Even a day . Cold sweats as auto immune . However I will ‘ gently ‘ suggest / ask Urinary Specialist if hormones. Say I have also read daily antibiotics . I have had MRI of bladder . Contrast dye ultrasound of bladder , Internal Transvaginal camera looking at bladder from inside . Only result was small Age fibroids . No cancer . Thank you Jesus 🙏🏻 so it will be upto Urinary Specialist , my G P and Duty Drs and I have tried , and tried. Thank you Clotgotten ( haha like a Lord of Rings name ) can I ask what DAILY Antibiotic are you taking please? Sounds radical - daily . Doctors not worrying about PH Balance at this point. I would do it if it could fix. 2 months so happy then bang its back . Thanks to this website also. Yours is only sensible and relevant reply it has helped as I feel out of answers , now waiting Specialist . NHS directed my G P referral to WITTINGDON Hospital . Please no I live 10 mins from UCLH , all my records , USound Scans MRI Intervaginal USound ALL Haematology blood clinic records at UCLH , so I had to get ref again by G P to UCLH not Wittingdon , delay . 2 years of urinary so I guess another delay won’t kill me . 👀 . UCLH has a whole new reno building block and MRI Scanner for Urinary . Not sending me off to Wittingdon thanks ( wherever that is) The Saga of the Bladder off to G P Now to do yet another urine pot sample . Will have a Costa Coffee and make a treat of it . ( no coffee does not give me Urine infections if I can’t have 1 weak one at home per day . That’s it hmmmph ☕️ coffee is all I have now. No sex drugs or rock and roll . 👋 🙏🏻

[Clotgotten in reply to Bloodredroses]

I tried the D mannose too but it didn't seem to help me

The daily antibiotic i am on is nitrofurantoin

50mg at bed time daily

My urologist in Surrey didn’t help, and seemed to want to write it all off as woman's problems

Then I heard this great interview with urologist at Newcastle hospital. he is called chris harding.You can listen to it online. Here is the link

drlouisenewson.co.uk/183-ur...

Re hormones. It could still be hormones even if 73- from what I read there are medical professionals out there now recommending vaginal estrogen for life, after menopause. They are saying frequent UTI's are serious and linked to what they now call 'genitourinary syndrome of menopuase.'

Hope this helps. Keep pushing because UTI's are serious and also really affect quality of life- at least that's what I found.

[Bloodredroses in reply to Clotgotten]

Thank you for reply . I will listen to podcast .

I am Open to any theory . Absolutely totally ruins quality of life outside of the house . This week I felt so unwell . It starts with cold sweats , ( infection and autoimmune . ) I could not take HRT because hormone estrogen as risk factor if had E P ( lung clot due APS Blood condition . Would vaginal estrogen for life, not be refused for same reason ? Are you on it ? One thing I thought of , I was OK until Friday I had a Transvaginal Ultrasound ,( camera probe inside vagina to pelvis to see inside urethra / bladder ) . It had some kind of Latex ( condom cover for hygiene obvs, slathered in lubricant . Way too much . I wonder now if that disturbed delicate PF Balance in Urethra . It’s strong anti bacterial due it goes into body, or latex allergy ). I Qhope it’s that reason , as it’s a cause , fine until then . In future if that Ultra Sound scan again I would ask to use a natural PH lubricant or nothing at all . Not necessary . Not painful . Have to be careful everything given to others , no problem, is not the same , if older or auto immune . I also read because folds in the Urethra , bacteria can hide . Reaccur .

How long must you stay on daily antibots ? Is it working so far ? How long on it?

I am very grateful one other person a to share this with. My G P ‘s don’t seem to have much more to give .

Was your Urologist in Surry a man or a woman? If a man , male female genital specialists can be a woman’s problem 😂 😤.

[Seraphine2021]

I fully believe that your symptoms could be as a result of taking Riveroxiban as it is not always the fantastic cure all that we have been led to believe. I was put on it ‘for life’ after a second(or maybe a third) pulmonary embolism having been on it for 6 months only five years before for a previous PE. I coped for the six months but as I was taking it for longer, various symptoms appeared including some of those you describe and also an increasingly upset stomach. It was getting to the point where I was afraid to go out for fear of having an attack of diarrhoea. My doctor had mentioned possible bladder problems to me and said to let her know if I experienced this as there were different medications that I could change to. I was feeling increasingly unwell in general the longer I took it and in the end I decided to research natural alternatives. I am not suggesting that anyone else should do this as it was my risky choice. I mention it only because when I stopped taking the Riveroxaban, all my symptoms stopped almost overnight, i started feeling better in myself and no more difficulty urinating, urgency or more importantly for me, no more diarrhoea! I looked into the drug more and discovered that it was lactose based and I am lactose intolerant (this explains the diarrhoea!) but no-one warned me or seemed to care about side effects at all. Despite my doctor’s concern, I have been treating myself with natural supplements for the past 8/9 months. I have just had blood tests to check clotting levels in preparation for an operation and all looks well. I would not ever suggest that anyone else should do this - it was my choice as the way I felt on Riveroxiban made me feel that life was not worth living so I felt that I had little to lose. My suggestion to you would be to go back to your doctor and ask to try one of the at least three alternative anticoagulant medications available to see if one of the others suits you better in the first instance and go from there. Do not let them fob you off before trying alternatives. Good luck!

[Bloodredroses in reply to Seraphine2021]

Yes I agree. All . I have emailed my Haematologist , who always replies. I can get an appointment with G P s reference also. I am Asking for alternatives. Takes NHS time .

Over 5 days at Xmas lost all meds whilst travelling no RIVROX . All bladder symptoms disappeared . ! I drank pure grapefruit juice , because I know it thins blood. And cannot drink it whilst on blood thinners. I scratched a tiny spot on a scar that can bleed occasionally . It really bled like blood was thin. I had this thought I could stop Rivaroxaban. If I drank grapefruit juice every day ! Licorace is another one . Can get capsules . I’m thinking if took the strongest naturals avoided blood clotting food . ( I don’t eat red meat ) bone broth thickens blood . I’m a tiny picky light food eater . My blood would stay thin. I will discuss with Heamo . I DONT ADVISE IT, I am not a DOCTOR, we are just discussing what we can ask the Doctors. . I had ONE E P , 6 years ago , no high levels in blood tests . Reduced to 10 mg I asked for 5 mg , was told it’s not a dose. I also have osteo arthritis pain in knees , a knee replacement /s is on the cards terrifies me , (although if on blood thinners , no clots after🙏🏻 ) . So complicated as cannot take Iboprofin with blood thinners, it’s the one thing , ( just 200 mg ) stops the terrible pain after a flare up . ( once p w ). Haematologists prefer opiates, Cocodomol I hate , won’t take .

Seraphine are you not taking stomach meds before the RIVROX? E g Lansoprazole ? What natural alternatives are you taking ? I know Grapefruit and Licorace a no with blood-thinners . I am not a Doctor you are not a Doctor , ( it’s not advice , just discussion between desperate people ) and I discuss everything with my Heamo first . If she says no . I listen, but having difficulty emptying bladder of pee for a long time is scary . The infections give me cold sweats then sweat bullets in first few days. My vagina is so sensitive , the ultra sound gel on probe camera in vagina may have started this last infection reaction 4 days later. It’s a lot of antibacterial gel pushed in . All because bladder investigation !!! I am not depressed but it’s so damn complicated body wise , I am over that part. Yes sirree. 😂

💕I am very sympathetic to those who endure cancer chemo and invasive complicated med procedures, regular hospital stays . I Pray for you , I see you . I feel for you 💗 🙏🏻 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

My dose of Lansoprazole has gone from 10 to 30 mg! I don’t take everyday , if I have an iboprofin and RIVROX plus partic if sachet of Fosfomycin antibiotic when bladder infection . I DO take the Lansoprazole and a no sugar Rennie . As stomach screaming .

I do take the Rivrox and all

Meds one time daily with a Slimfast skim milk shake, as taking a mild blood pressure and mild statin as well. ( afib and cholesterol levels stable so not fighting those meds) Slimfast / milk seems to protect stomach . I am scared Rivrox is affecting my bladder . Scans show slightly enlarged . Had U sound contrast. MRI contrast , Transvaginal U Sound ( camera inside vagina to see bladder inside . (All clear for a 74 year old) I will wait to meet Urinary Specialist as G P ref . Await Heamatologist reply may ask for face to face ref or phone call and say I need to stop Rivrox. Have been thinking as live in London to blow my Xmas money go private go to London Bridge Hospital once try to see Dr Hughes or one of his own team , 2 nd opinion always helps. I can ask for alternative blood thinner suggestions . Bounce my natural pure grapefruit juice and Licorace idea . I am a one time small only clot good levels bloods. . I’m Not internally bleeding but I feel oversensitivity in vagina and bladder plus infections. I would honestly take blood thinners to fly , as if clot , would be hell and expensive needing Heparin injections overseas . Anyhoo I will always ask my Heamo first . I know I feel about ‘done ‘ on Rivrox . What other blood thinners have anybody taken and found not blow bladder up or make feel very tired and unwell? Thanks Clotties Bless this site and thread . APS fellow sisters and brothers of the blood 🩸 vampire 🧛‍♀️ Did any see latest newest Interview with a Vampire ( very handsomes and lovelys) Just our cup of 🩸 oops sorry cup of tea.

[Seraphine2021 in reply to Bloodredroses]

I take full responsibility for choosing the route of coming off Riveroxiban (Xarelto) and would never suggest anyone do the same unless they have thoroughly researched the whole subject and taken advice. That being said, I have managed to find a balance on a mixture of Vitamin E - nature’s natural anticoagulant, Nattokinase - a form of fermented soya which is good for intestines and so many other things (look it up) and also has a blood thinning effect too.. I also take omega 3, 6 and 9 for brain function but they also have a blood thinning effect. Nw that I am no longer on the Xarelto I can occasionally take Aspirin (the only pain killer/anti-inflammatory that I can really take) as I also have Arthritis. I am about to have a hip replacement and the anaesthetist here in France where I live, was very concerned that I had come off Xarelto so ordered comprehensive blood tests to make sure it was safe - so far everything has come back within safe parameters. It is worth noting that taking Xarelto (Riveroxiban) only helps prevent further clots but people have still had them whilst on this medication. I am a little surprised that they have put you on these tablets for life when you have only had one PE. I have had three bilateral PEs over 10 years but they only put me on them for life after the most recent one. Often they put you on them for 6 months for a first episode. Genetic testing is also worth having to find out what caused your PE in the first place. I can’t stress enough that people need to do their own research, consult with medical professionals they trust and make their own decisions about what to do - what I am doing seems to be working for me but that is no guarantee that it would be good for someone else, but sadly pharmaceuticals are also not always as safe as they would have us believe.

[Bloodredroses in reply to Seraphine2021]

My first EP caused by APS blood platelet condition , what caused that ? Autoimmune . Parents didn’t have brothers not . But grandparents may have . Father died of stroke . I had a hepatitis mystery origin, anti viral cure for 6 months . Cured but could have caused the APS.

I Sm told its general take paracetamol not Asprin if on blood thinners . I’m Not sure about clot interaction . Can you Not take Iboprofin if not on blood thinners . I take a 200 Mg , it is the only med that removes my horrible osteo arthritis knee flare ups enough to calm a flare up . I just take 1..

My knee surgeon is very relaxed about knee replacement patients on blood thinners . He is one of top in London . He says , he often operates on oldies that cannot stop blood thinners , unlike you or me . He said, They are just observed in hospital for a day or 2 , any excess bleeding we deal with . Not a biggy. They are up and about in days and walking in a month .

Hips are MUCH less severe than knee replacement . He said ‘you don’t need to be so paranoid , you are not so different to other patients . Better placed . ‘ I have known him for 10 years . I trust him . Need to get organised for rehab first . He and my Haematologist communicate ) same hospital ) a bridging plan ( stopping for 5 min days before , a day or so after . Honestly I would feel more worried to not be back on blood thinners after the operation . Knees are cutting flesh , sawing off bones twice , boring steel pegs into 2 ends of bone , cementing in . Sewing up . Lot of bleeding . Hip is a huge anount less , 2 days walking . Knees are month/s. Have to trust Surgeon or don’t . My Surgeon has done thousands In 20 plus years . He said Madam , yours will not turn out any less better ( good) than those . 😀😜

[Seraphine2021 in reply to Bloodredroses]

This has always been the problem for me with painkillers/anti-inflammatories - I can’t tolerate Paracetamol or Ibuprofen - can only take aspirin type drugs like Diclofenac and Aspirin - I’ve spent the last 4 years in full pain unable to take anything to ease it whilst on the Xarelto. Even now I only take pain killers at night so that I can sleep. Here in France I will be up the following day after the operation but heparin is standard after an op anyway to avoid clots, and home from there if I wanted. I have opted for a few days convalescence so that I can get some physio to help me climb stairs as I have fallen into such a poor physical state over the last few years. If all goes well, I will have the second hip replaced in a few months time. I am not worried about the clotting issues of the operation but having had three PEs, I am concerned about the effects of a general anaesthetic on my considerably compromised lungs. If I survive the ops, I will be slightly more confident about the risks of clotting again when I can be more active again. Fingers crossed!

[Bloodredroses in reply to Seraphine2021]

God sorry , what happens if you take Ibororifin ? What about Cocodomol . ? You sound over anxious . The effects of a general anaesthetic on your Lungs will be minimal, only will give you as much as you need .general anaesthesiologist will be watching . You will survive no problem . Have faith . Get some mild anxiety meds to help you calm down . You will meet the anaesthesiologist before op, tell him how anxious you are about lungs. Plus Surgeon also . They can discuss your fears . Actually that arthritis pain if every day will give you anxiety . You need some meds to relax sounds like . Get unwound ASAP . Call G P tomorrow .

[Seraphine2021 in reply to Bloodredroses]

Thanks for your concerns but I am actually reasonably calm. It works a bit differently in France so I’ve already seen and discussed all this stuff with the surgeon and the Anaesthetist which is why the Anaesthetist has has ordered these more serious blood tests to make sure he knows exactly what’s what. General anaesthetics do affect your lungs though so I know that they will be watching how I do. Pain over a period of time has made me down rather than anxious but I am hopeful that if the hip replacement and then the other one later get me up and moving better afterwards, that will change my life and I can at least strive to claim my life back and be able to do more again so I’m hopeful. Re the drugs Ibuprofen is not a good drug (if there are any good pharmaceuticals) and it gives me vertigo, Cocodamol is a mixture of codeine and paracetamol. If I am absolutely desperate I can tolerate codeine but I can’t tolerate paracetamol. I am just one of those people who can’t tolerate a lot of the drugs around. As I prefer to not take pharmaceuticals if I don’t have to anyway, I try to keep what I take to a minimum. CBD oil helps me at night I’ve found. It’s interesting that France is discouraging the use of many pharmaceutical drugs if they deem their side effects outweigh the benefits of the drug - many commonly used drugs are on that list - unfortunately including Diclofenac which is the anti-inflammatory drug I can take! I am sure though that the bladder problems that you are experiencing will be helped by changing the brand of anticoagulant you take so hopefully you can do that fairly quickly. Good luck.

[Bloodredroses in reply to Seraphine2021]

Great thank you for reply . Good ( . It was mention of not surviving op) I never think that before op. I just don’t go there to stay positive not get nervous . G P told me pain can induce anxiety . Easily fixed . Yes I try not to take any pills . Luckily I can take a low dose Iboprofin (200 mg not 500 mg) when bad flare up of knees. ( after shopping trip once p w . I have asked Haematologist for this. Said OK Once only . I hate cocodomol - sleepy . I take a ton of naturals . Cordyceps for immune , magnesium chilate for afib , auto immune , cranberry for bladder and D Mannose . turmeric in mornings . Pollinosan Hayfever tabs. ( amazing and helps with bad arthritis pain I have every day. Natural herbs in it from all over world) I researched . Plus HEAT . From electric throw blanket .

Meds , I only take 1 low dose Bos blood pressure pill which was from Cardiologists advise to stop afib . It did . A 5 mg statin from Lipid specialist . Great cholesteral results . They all say I am managing my multi conditions very well . I have a ‘level’ of arthritis pain every day . I can live with that . My appointments all by phone . I am upbeat and happy . I wish I could walk every day but it is what it is . Could be much worse . Having APS Autoimmune, if a bad day , I rest I Hate pills and especially opiates . Good luck with op . Wish you well 💕 👋

[Seraphine2021 in reply to Bloodredroses]

Thanks for that - sounds like we are doing what we can to help ourselves and thinking as positively as we can - very effective! I only mentioned not surviving, slightly sarcastically, as the anaesthetist told me precisely that I have a very complex medical history and I could die! Clearly he needs to work on his bedside manner! I am a fatalist and I accept that whatever happens is meant to happen so just do the best I can to be sensible and leave the rest in the lap of the gods! After serious back surgery many years ago, I was put on Tramadol (evil stuff) and became physically addicted to it - took me a long time to ween myself off it so am very wary about what I take now. Onwards and upwards though - and hope for the best!

[Bloodredroses in reply to Seraphine2021]

Ironic joke . That is very negative of that aneasethiologist. I would say seeetly ‘oh you better make sure I don.t after warning me . Just joking ‘ an electric throw blanket has helped me so much . Take care xx 🙏🏻

[Seraphine2021 in reply to Seraphine2021]

I do hope all goes well with changing your meds to minimise the symptoms you’ve been having. I am sure that I will be fine - too much left to do before I die!

[Brookiebiceps in reply to Seraphine2021]

Strange, I remember my 1st few months on this medication I had a terrible uti. Then I started to leak more but I just assumed I had 5 kids so this was normal. I do sometimes get a burning feeling in my bladder and my urine is hard to come out. I have sit for a few minutes. I'm also on 10 mg. May I ask what natural thinners you're trying. I even ask if I can switch to aspirin but my Dr says no! In 2020 I have a PE in each lung. My mom passed from a clot in 2001, so they want me to stay on them. All testing have been normal so far.

[Bloodredroses in reply to Brookiebiceps]

Thank you for reply . I’m not on natural thinners . On RIVROX . Other person in thread mentioned that . I can’t discuss as not a Dr dear .

Yes leak , not empty , sit and sit squeezing , hard to come out . What age are you ? That can be a reason I am told. ( usual ) it’s very telling , over Xmas as lost bag of meds , no RIVROX 5 / 6 days . All above symptoms gone !! I was worried as staying with brother , hogging his bathroom , Cleaning toilet seat due ‘rush to pee’ but nothing , no getting up at night , no odour . Zero . Started up again symptoms back! Gods sake . So if saggy bladder or elderly vagina ( my terms ) why NO symptoms for 5/6 days??? I had ultra sound scan , contrast drink to glow on screen . 2 pints . Peed till empty . Scan showed urine still in there . Not emptying .! Done everything . All scans MRIS Keegles. Now wait see Urinary Specialist . Plus Heamatologist same reason to ask stop , if other alternative blood thinner not with same bladder affect . Might be same who knows . It’s a long journey , sorry gotta go pee …..

[Seraphine2021 in reply to Brookiebiceps]

There is definitely a link with this medication and bladder problems because both my GP and my Haematologist told me to tell them if I had any problems in that area as a change in medication could help. For what natural supplements I take see my reply to the other lady but please do your own research and take advice before doing anything drastic - just because it appears to be working well for me, does not mean it will for you. I am constantly doing my own ongoing risk assessment and if I felt it would be in my interests to do so, would be prepared to go back on medication (just not Rivaroxaban).

[Brookiebiceps in reply to Seraphine2021]

Definitely I just like to see what others are doing. Are you still at bleeding risk with natural remedies? Heavy periods, stopping before surgery etc?

[Seraphine2021 in reply to Brookiebiceps]

My surgeon didn’t seem worried about that but I will stop taking some things a few days before to be on the safe side and then they will give me heparin after the op.

[Bloodredroses in reply to Seraphine2021]

Heparin if a blood clot . If excess bleeding there are meds to thicken blood . Vit K ? RIVAROX has a reversal . Years ago I stopped a bad bleed on bottom of foot Bcuz trod on prongs of plug with sharp. Edges . Hours . I used ice and then Vaseline .google . It wasn’t pumping . Newly on RIVAROX . Not impressed .

[Bloodredroses in reply to Seraphine2021]

Thank you , I hear you . No I don’t do anything that my Haematologist ( a professor of it) does not agree . Plus may get a 2nd opinion. From Prof G Hughes’s Team at LONDON Bridge . Bye good luck 👋 thank you

[Bloodredroses in reply to Bloodredroses]

Yes definitely. Drink a carton of pure grapefruit juice and licorace. See how that goes . Look into beetroot and ginger . I eat those with RIVROX. I can’t eat fermented soy, gives mr irritable bowel , wind . No risk as you not on blood thinners . . I read with RIVAROX to not take Grapefruit Licorace Often women not on blood thinners go to A and E with excess bleeding , periods and what not . Some women can’t eat Chinese takeaway due certain ingredients in additives . Wide open -

Iron , alcohol. Women alcoholics sadly often have deficiencies , as blood thin from excess alcohol . Best research everything . Yes stay open, who wants untreated clots?

[Seraphine2021 in reply to Bloodredroses]

Good luck!