Short of breath still...: I had several... - Anticoagulation S...

Anticoagulation Support

3,846 members1,356 posts

Short of breath still...

Willow7733 profile image
5 Replies

I had several PEs in December and I wonder if it is normal to be still so short of breath? I am having a hard time having any kind of conversation because I can’t seem to get enough air. Is this a part of the recovery??

Written by
Willow7733 profile image
Willow7733
To view profiles and participate in discussions please or .
5 Replies

Definitely - the clots will have damaged your lung tissue and it takes its own sweet time to repair! My PEs were 3.5 years ago, and I still get very breathless on occasion, not helped by having had Covid-19 a year ago! But they do heal. The secret, I find, is to push yourself gently, but not to overdo it!

in reply to

Looking back I think lots of us had covid back in autumn 2019 but it had masqueraded as a heavy cold and we had thought that we had had bad colds as covid hadn't been officially christened back then.

Jomomo profile image
Jomomo in reply to

Yes Yes Yes! I did! I didn't think of covid until suddenly we had mandatory lockdowns.

in reply to Jomomo

I had heard the stories about it on the tv and radio and I wasn't totally ignorant but still when everything shut down back in March 2020 it was still a shock though like something off a horror movie!

Jomomo profile image
Jomomo

What doctors don't discuss with you is recovery time. It can take years to recover. I had surgery to remove 3 blood clots in my lungs. I thought I was going to bounce right back and have no problems. Doctors don't discuss recovery with you. It can take a very long time. I have an oxygen machine now and my tubes are long enough for me to go anywhere in my home, I'm trying to get a portable backpack oxygen machine for leaving the house. If I walked or exerted myself any little bit I was breathless. I didn't realize my oxygen saturation plummeted every time I did anything physical. Now I can get up and do things because my oxygen is enriching my blood, I keep my oxygen on 24-7. It has made a huge difference in my life. HUGE!

Not what you're looking for?

You may also like...

shortness of breath and warfarin

My husband has a titanium heart valve (for 20 years) and is on warfarin. now he has shortness of...

Four years on and still feeling 20 years older

Hi, I had my PE four years ago, and was admitted to hospital on the 18/02/15. I had been feeling...

2 years on and still struggling

I had a very awful PE August of 2018 from Birth control use and have never fully recovered and very...

Can't regain any form of fitness

Hi I had an Aortic heart valve replacement surgery in July 2018 and have been on Warfarin ever...

Inr still low 4 weeks on

My inr is still low 1.4, 1.5. What could of caused it. Thanks any advice would be appreciated