How do you feel after your PE

[Caztratt]

Hi Everyone. I'm new here. I had a PE 18 months ago. It was so big the doctors said I'm lucky to be here. I'm now on rivaroxaban for life. I still find it hard to believe I'm here after it was so big. Other people I know have died. I still get breathless. It's funny how people soon forget you had one after so long and expect you to feel the same as you did before it happened and still want you to lift heavy stuff and don't realise you still get breathless doing housework and stuff. I always get covered in bruises with the rivaroxaban and scared I'm going to bleed to much if I have an accident. Does anyone else out there feel this way? Thank you for reading

[linkfield]

It took a while to get over the fact that you had an event that was potentially life threatening. You have to move on and turn it around in your head and tell yourself that you didn't die .Now start to live and enjoy yourself !

[WilliamsAD]

Yes. Exactly as you described.

Internal bleeding for us is dangerous of course but unless you take a heavy blow it's not likely to happen. Everyday bumps etc don't cause internal bleeds. There might be other reasons why you might get a bleed such as nsaids in the stomach etc but that is a different issue. In my opinion you just carry on as normal albeit with limitations.

I've also found I can do more if I try more.

[Caztratt]

Thanks for your replies. I'm trying to do just that. Some days better than others. Just makes you realise you never know what's round the corner. Thanks again

[Tr1cky]

I know exactly have you must be feeling and I felt the same as I had a PE nearly 2 years ago. The worries are always in the back of your mind, and not many people understand how you are feeling. My consultant said share how you are feeling which you are doing now. As linkfield said ‘’ Now start to live and enjoy yourself ‘’

[Hidden]

I was diagnosed just this past Thursday, and I'm so glad to have found these forums where other people are going through the same thing! On Rivaroxoban for now - hope I won't have to be on it for ever, but only time will tell. Still feeling very rough, but that is mostly due to the strong antibiotics they put me on to cure the underlying chest infection, which is what they think caused the PE. Didn't even know I had a chest infection, and it wasn't until I tried to sing in church on Sunday that I could feel how gunked up the bottom of my lungs are! Most odd.... Looking forward to getting the antibiotics out of my system over the next 24 hours or so, and then seeing how I feel.

[Hidden]

Is your a unprovoke PE ?

[Hidden]

How much dosage now? And what are the side effects? I'm feeling unfocus and fatigue at times

[Caztratt in reply to Hidden]

Hi. My PE came as a total shock. I went to docs numerous times n they said it was just a torn ligament in my leg. I thought it was my asthma as I could hardly breathe. I then collapsed twice n woke up thinking I was having a heart attack. They rushed me to hospital to find that they found the biggest clots in my lungs m heart they had ever seen there for someone to have survived it. I was very scared. I now take 20 mg everyday on a morning with my breakfast n a glass of water for the rest of my life. I get very tired and have scarring on my lungs.