Sinemet

[Catherine62]

Hello everyone,

Happy spring wishes. Just curious if anyone has been prescribed or is taking Sinemet?

[bluejadedwho]

I’m unsure why that would work. It’s used specifically for Parkinson’s when they have low levels of the neurotransmitter dopamine. In AMN that is not the cause.

[Catherine62 in reply to bluejadedwho]

Yes, you would think…

However, I’ve just returned from my consultation/assessment with the team at KKI Johns Hopkins, and this is what has been prescribed.

From my understanding, and I don’t have all the visit notes to completely digest the conceptualization at this point, I have developed—as a result of AMN—dystonia and contracture of the ankle. Sinemet, at a sub clinical level of what would be typical for Parkinsons, is to treat this.

I realize this may be about my biomechanics and neuromuscular/systemic vulnerabilities converging (if you will) with AMN, but surely I am not the only one???

I am in the titration phase in terms of dosing at this point, but it may actually be assisting me in feeling a bit less stiff.

We’ll see.

[SongStream in reply to bluejadedwho]

I’ve used the generic version: Caradopa Levadopal, which helped with my clonus but then it lost its effectiveness.