Anaphylactic Shock

[Jacquie7]

I came to this website in hope for help. My husband has had an Anaphylactic shock to a vascular closure devise used to seal the artery of which he had a heart cath preformed. They never told us they were using this device and it contains water and polyethylene glycol. He almost died and was in the hospital 3 days. The doctor called the Drug manufacture and had to ask what was in this devise, they told him same thing as Miralax. My husband has on his allergy list Miralax. The Doctor notified the FDA and the hospital has began an investigation. The Doctor ask if he can use this for journal article. This happen in October 2017, since then the manufacture has changed it's website and pamphlets and launched a FDA approved new devise, same thing but claims its better. The FDA has not yet released their investigation for the end of quarter 2017. The Doctor said to me that he did find a heart defect that was causing my husband pain and that if he would have need a stent he would have died and they wouldn't have know why because the stents are covered with polyethylene glycol. The Doctor also told me to go home and get rid of everything polyethylene glycol. They stopped all his medicine and was going to send him home with an eppy pen until they seen that it to has polyethylene glycol in it. It's in everything over the counter and prescriptions, Tylenol, Benadryl, Dawn, Tide, I even got rid of polyester curtains and sheets. The Doctor said the next day that his phone is ringing off the hook. I called a couple of Lawyers and nobody seems interested, maybe I'm not talking to the right. I am afraid that many people will be injured or died because of lack of allergy testing. We are traveling 3 hours to get patch tested. Any help you can give me, God Bless, Jacquie

[Debduck]

Thanks for sharing this, you might want to post on the other website Life without Polyethylene glycol and its friends. I'm allergic to PEG and propylene glycol.PEG is in many medications, vitamins, creams, shampoos and can be a food additive. I hope your husband carries an Epipen and checks out the inactive ingredients of anything he use, because its an inactive ingredient it may not be listed on the label

[Jacquie7 in reply to Debduck]

Thank you for replying! Since October I have researched about 200 drugs that my husband took over 10 years and all of his side effects I notice has come from PEG and it's different compounds in them. He just kept getting sicker and sicker. We keep reaching out for answers and yet we have to educate the doctors and pharmacist. My question is how did we ever get here? This poison has got to be controlled and people need to be tested. The patch test scheduled has cancelled the PEG and PG but will test for other substances in the drugs, reason is that they don't have time to order it? They had 2 months.

I have found that the new drugs are hard to find researching you have to take out a 0 to find them. Also I found a Chemist that will make and epipen without PEG. I Believe my husband has a Total Induce Loss of Tolerance and wonder where to go to prove that. Also in my research I found that my husband is the second one to suffer a anaphylactic reaction to a PEG compound closure devise. Going to see surgeons this week. My husband has so much pain they don't know where it's coming from. Many test and still no results. I think is the poison.

Jacquie

[Eaglefixer]

i found a good site to find what i need to get tested for that i will tell my doctor to test me.

chemotechnique.se/products/...

chemotechnique.se/products/...

chemotechnique.se/products/...

[Jacquie7 in reply to Eaglefixer]

Thanks I'll look in America!

[Eaglefixer]

Jacquie,

I coded during my heart catheterization back in 2002 as they started to inject the dye into me. I remember during the procedure that the Doctor and nurse said the i was turning beet red head to toe. At the time i could hear but couldn't open my eyes and all of a sudden i started getting real cold. I remember trying to reach for a blanket or something and Stan the nurse told me i got you buddy. After that i could feel what i thought was a warn blanket being put on me but found out later that is was epinephrine. It took 3 hours to stabilize me and i had to been shocked. The next day they sent me to a hospital in Atlanta to have the Heart catheterization. This was my very 1st reaction to anything and now i have reactions to just about any medication. Its 2018 now and i just when back to my cardiologist with chest pain. He did a EKG and Echo cardiogram and all was normal but recommends another heart catheterization but is sending me to a specialize cardiologist in Atlanta.

It seems that all the medication that i have a problem with has PEG so i have seen 3 different Allergist and the recent Dr called me after I dropped off a copy of a Peg review that i downloaded from the internet that cost me $38 and told me that she couldn't test me because i was high risk for Anaphylactic Reaction and its was very dangerous to be tested in a small clinic also due to having my Anti-Ige Receptor Ab tested and it testing very high at 38.3 where the normal range is 0.0 to 5.0.

My Doctor recommend that i may want to go to the Mayo clinic and be tested for Mast cell activation syndrome (MCAS).

[Jacquie7]

Thank You for replying! Did the Allergist test for the Anti-Ige Receptor Ab?

[Eaglefixer in reply to Jacquie7]

Yes they ordered the blood work also had my tryptase level checked and it was 12.5 and the limits are 1.0 to 11.5

[Eaglefixer]

My Doctor just mailed me some blood work to have done ASAP and this is what she ordered.

It does not require fasting before taking blood.

anti FCeR1 antibody (anti IGE) can substitute Chronic Urticaria Index. Labcorp test code- 820022, Quest- 16838

Immunoglobulin E, Total Assessment(s) L50.1 , Chronic idiopathic urticaria

Tryptase Assessment(s) T78.2XXD, Idiopathic anaphylaxis. subsequent encounter

CBC With Differential/Platelet Assessment(s) T78.2XXD, Idiopathic anaphytaxis, subsequent encounter

Comp. Metabolic Panel (14) Assessment(s) T78.2XXD, Idiopathic anaphytaxis, subsequent encounter

She also wants a blood sample of Tryptase Assessment(s) T78.2XXD, Idiopathic anaphylaxis. subsequent encounter only after a acute attack (anaphylaxis) at emergency room between 15minutes to 3 hrs after symptom onset.

I'll post blood work after i get them.

Steve

.

[Jacquie7]

Thanks for the information! Good Luck on your labs. We leave tomorrow for the patch test of possible 180 minerals, metals, compounds assortment. As soon as they put them on, my husbands head will start spinning like the exorcist and I'll go running out of the room screaming! HELP! I can just see it happening!

Jacquie

[Jacquie7 in reply to Jacquie7]

We received the test results and yes Kevin's life has changed:

Anidoamine

Balsam of Peru

Benzoic Acid and Benzoates

Cinnamic Aldehyde

Colophony

Methlchloroisothiazolinone-Methylisothiazolinone

Methyldibromo Glutaronitrile

Methylisothiazolinone

Propolis

Propylene Glycol

and

not tested but already know Polyethlene Glycol

We have to really watch what he puts on his skin and eats and swallows.

The Dr. order a eppiepen and gave me a list of what I should get him.

Good news:

No allergies to Dyes or Metals. only +1 for silver

No further investigation is needed. No blood work done.

He is to avoid all products containing these ingredients for the rest of his life.

And of course they all have list of other names too. The allergy book has just moved to a 2" Binder!

I'm tired.

Jacquie