Spasms : I get spasms everywhere. Legs... - Andover Fibromyal...

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Spasms

alison84230 profile image
17 Replies

I get spasms everywhere. Legs fingers toes neck wrist. Its not painful just an idd feeling and i want to know if its to do with the fibro or something else.

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alison84230 profile image
alison84230
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17 Replies
Dizzytwo profile image
Dizzytwo

Hi there alison, nice to meet you and welcome you to our group.

I know a lot of people complain about cramping. I do get it too. For me I'm not sure it's part and parcel of fibro but either the muscles cramping from over use or lack of movement. But either of those things do make my muscles spasm.

I know in these difficult days of the virus it can be hard to get to see a GP. But I would suggest if these spasms are new to you it may be wise to talk with your doctor. We have to be careful and not put everything down to Fibro. I hope you enjoy the rest of your evening :)

Mo

PS I see you have left your post unlocked to this community only. If you want to lock your posts for privacy reasons this link will show you how

healthunlocked.com/afmcguk/...

elizabthmckye profile image
elizabthmckye in reply to Dizzytwo

does anyone suffer hypertension ie cold all the tine even when its hot

Dizzytwo profile image
Dizzytwo in reply to elizabthmckye

Hi Zoe, may I suggest if you have a new question then it would be better to start a new post. Thank you xx

Bencaseyx profile image
Bencaseyx

Hi Alison. ...I too get spasms in my fingers which makes medrop things randomly. I also get spasms in my legs. But the most painful ones are in my back. When these happen I want to kill myself as the pain is unbearable. I can't move and I even have to hold my breath. There doesn't seem to be any rhyme or reason but I am having a medication review to see if a different one will improve everything I suffer with. I'm currently on sertraline but think it's far too mild to deal with my symptoms.

Take care

Carole

Dizzytwo profile image
Dizzytwo in reply to Bencaseyx

I have heard people say drinking bitter lemon helps cramp due to it having quinine in it?

Mo

elizabthmckye profile image
elizabthmckye in reply to Dizzytwo

that's right it does and tonic water too contains quinine

alison84230 profile image
alison84230 in reply to elizabthmckye

Well i should be fine the amount of tonic I drink.... With my gin. 🤔

elizabthmckye profile image
elizabthmckye in reply to Bencaseyx

hi Carole I feel like you do suicidal cause of the pain,my hands drop things too and my wrist is buckled now cause I've used it so much I've had to move to being left handed instead of being fully right.people who don't have fibro pain don't understand what it feels like, my worse time is always but menstrual cycle time is always really bad for me my back ,neck ect is knotted up due to pain.I feel suicidal 90%of the time,my hands shake then my legs shake,iam trying to get p.i.p last tine they failed me cause I attended the appointment,its like they don't believe anything you say,and from what I've been told the people at the medical assessment are not trained doctors and nurses so what right do they have saying there is nothing wrong with you

Bencaseyx profile image
Bencaseyx in reply to elizabthmckye

I too applied for pip....unsuccessfully. I've been urged to appeal but TBH I haven't got the mental or physical energy. I'm having mental health counselling due to my suicidal thoughts but after 12 sessions not sure how it is benefiting me. I have to work full time to pay my bills and not due to retire for another 9 years under the new state pension rules. I really can't see a way forward. But I'm hoping that with a change of medication next week, I will see an improvement in the next month or so. Not holding my breath though!

alison84230 profile image
alison84230 in reply to Bencaseyx

They want people to give up. Thats why ive provided so much evidence. I cant go to wirk as i cant walk so i really need this!

elizabthmckye profile image
elizabthmckye in reply to Bencaseyx

sorry to hear that I've got another 20yrars before I retire ,if I manage to get a job,iam struggling day by day some days iam better than others but having more bad days than good. Hope you can sort out your problems

cf5mike profile image
cf5mike

I twitch or spasm, it's like someone testing my reflexes and I have no controle of it. It is more likely in the morning for me when I am shakky anyway.

elizabthmckye profile image
elizabthmckye in reply to cf5mike

hi do you get any tingling sensations?like pins and needles or change of temperature of your hands and feet.?And do you feel sensitive to cold and extreme heat when others are feeling different

alison84230 profile image
alison84230 in reply to elizabthmckye

I dont get any tingling. I am always more sensitive that others with the heat or cold.

elizabthmckye profile image
elizabthmckye

Hi its quite possible it is to do with the fibromyalgia, I get headaches all the time pain in my muscles, I feel like I've not slept properly even when I do sleep ,I get burning sensations in my hands ,feet muscles,I have also a sensitivity to hot and cold,cant determine if something is damp,cold or wet due to sensitivity in my hands and feet,go purple like they have just been in a freezer they hurt all the time.headache all the time and cause I've been taking painkillers for as long as I have they don't work.are you experiencing any of the symptoms I have discribed. Iam addicted to painkillers and I cause I've been on them for so long when the pain gets bad I cant do anything,I get brain fog,don't know what day date time it is ect

alison84230 profile image
alison84230 in reply to elizabthmckye

Wow thats alot. My dr has been great and im on morphine patches which obviously give me a small dose 24/7 but when i get up my legs are very stiff and painful especially inside my knees. That usually goes away in about an hour and then im just in what i call my normal amount of pain which is much more bearable on the morphine. Before i got that i was literally suicdal.

elizabthmckye profile image
elizabthmckye in reply to alison84230

hi Alison my doctor isn't very understanding and does not see me on a day to day basis so he doesn't know how bad iam.pleased to meet you

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