i have suffered with fibro now for 5 years but was only diagnosed 3 years ago,i believe it was triggered by my sons illness as he was diagnosed with leukemia when he was 4 and i put the pain aside(well as best as one can) because his health came first.and it is only because of my children that i drag my poor aching body out of bed each day. its strange how it progresses from back and arms to all over body pain the worst is my feet and legs and the terrible pain i get down my jaw and the sides of my face no that's a lie i just hurt everywhere to the point i am hardly mobile,but i hobble and crawl around to try and keep mobile. the doctors have been useless to the point one told me there was nothing wrong with me lol. but i met a decent one who referred me to the rheumatoid clinic i was diagnosed given a leaflet and sent home. i mean i had never even heard of fibro what now! so i went home searched on google and found a ton of helpful information. its been a battle ever since to get help with the pain that cripples my everyday life but i put on my show face for my children and soldier on because if my boy can beat cancer im going to, well not beat this pain but hopefully manage it better!. im on a waiting list to see the chronic pain clinic and hopefully i will get some much needed help
Written by
yukiangel
To view profiles and participate in discussions please or .
I like you have had it for years repeated visits to GP was use over the counter pain killers,heat and physio never once saying what it was just that because of whiplash I could expect deteration. Pain got so unbearable in upper body particularly shoulders and neck so another visit to the doctors ,I couldn't lift my arms. Decided it was tendentious gave me cortisone injections,this worked for a while but soon back to normal. I went back to GP there had been a change.The practice had new name new doctors thankfully for me. New GP had read all my notes said he didn't think more cortisone would help as this was a short term fix he felt that I had that I had fibromyalgia.To cut along story short put me on predisilone starting with a high dose reducing it gradually checking bloods regularly I have felt a different person ok it's not going to disappear but life is more bearable and no two days are the same.Some days like you I feel I could give in but then an saying of an old nursing sister comes to mind I'm Warm and Breathing .I have found that a duvet on mattress helps as it mounds to you,less pressure on aching body. Take care you are not alone
I'm glad you seem to have found something that works for you, however it is unusual that you say Prednisolone helped the Fibro as usually it helps people initially and the benefit is only short term. The late Professor Davies (from FMS Clinic, London) team told me that steroids are no help for Fibro, but do help a condition called Polymyalgia (PMR). For more information on PMR see below;
Hi it's me again pollyperks just as an after thought I go swimmimming two or three times a week,ok it's not perfect but using the warmer small pool which is only 0.8 metres helps relax the joints and also refreshed.l stay in pool a short while just taking it a little at a time. What ever you do it doesn't have to be swimming just very gentle excerise try it
Sorry to hear about your sons diagnosis, I cannot imagine how hard it must be to keep strong and care for him while he goes through the treatment without the added extra of living with Fibro too. I can only send my best wishes and a little extra strength and hope you have a good support network to help you to deal with this distressing situation.
You mention your Jaw, many people with Fibro seem to be susectible to other conditions and one I have is called Temporomandibular Joint Dysfunction/Disorder. The symptoms sound very similar to what you are describing, so I thought I'd provide you with this link which may be of interest;
I hope all goes well at Pain Clinic referral, do keep us updated
I wondered if I could draw your attention to a post entitled 'How do I lock posts so only members of this community can read them?' as I see this post is not locked. All the information you need should you wish to lock it can be found in the post below;
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
